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Instagram Public Photos with #syndromes

If you need a mobility aid, why not have some fun - right?! it’s still #dysautonomiaawarenessmonth and since i’ve been diagnosed. ive had so many things change. i’m under investigations for two other conditions on top of my existing ones! we already know that i have pots (diagnosed in may) and are pretty sure i have heds and maybe cfs/me? who knows anymore! i’m just living my life with a scooter 🏎♿️🚺 #invisibledisability #ivisibleillness #dysautonomiaawareness #dysautonomia #potssyndrome #heds #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome #chronicillness #chronicallyfabulous #disabledandcute #chronicfatiguesyndrome #chronicpain #chronicillnesswarrior #cfs #pcos #polycysticovariansyndrome #spoonie #spoonielife #syndromes

comment 0 star 12 6 hours ago

Hey everyone!
#myvoiceshavetourettes is doing an #instagramtakeover of the #rvkfringe instagram for the week!
our show is a #standupcomedy show that features #comedians with #disorders and #syndromes to raise #awareness in a fun way! we perform the show every thursday at @secret_cellar_reykjavik at 21:00 (9pm)!
#rvkfringetakeover

comment 0 star 15 9 hours ago

In honor of pediatric boards this week! nail-patella syndrome. not surprisingly the hallmark is poorly developed finger/toenails and patella (90% cases). autosomal dominant inheritance involving chromosome 9. can have associated renal involvement with proteinuria (50% cases) with esrd (30% of the time) by 3rd-4th decade. chronic knee pain and subluxation leads to arthritis. associated ortho complaints with decrease rom of elbow and radial head subluxation can be seen as well. nail findings usually present at birth (absent, hypoplastic or dystrophic). #pedsboards #ortho #pedsresident #sportsmedicine #pediatrics #syndromes #patellarinstability #medschool #medstudent #pediatricsportsmedicine

comment 0 star 11 21 hours ago

🌺 simptomat e anemisë:⠀
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⚡ nivel të ulët të energjisë⠀
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⚡ lodhje⠀
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⚡ zvogëlim të kapacitetit të të ushtruarit⠀
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⚡ vështirësi përqendrimi⠀
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⚡ vështirësi për të mësuar gjëra të reja⠀
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⚡ dhimbje koke⠀
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⚡ prirje ndaj infeksioneve⠀
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⚡ nervozizëm⠀
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⚡ dobësi⠀
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⚡ lëkurë të zbehtë⠀
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"📲 kontakt: ⠀
tel.: +355 042 32 33 34⠀
mob.: +355 69 32 52 303⠀
email: [email protected]⠀
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#ith #anemia #syndromes #protect #safe #care

comment 0 star 11 Yesterday

1 week to go until my #abseil - fingers and toes tightly crossed for the weather this time!
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on sunday 21st october, in association with @nystagmusnetwork, i'll be #abseiling down the @amorbit tower in @queenelizabetholympicpark, in aid of @moorfieldseyecharity, to raise money for #research into the #eyecondition #nystagmus.
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you can donate at justgiving.com/welleyenever
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i've never abseiled before, so it's a big leap for a beginner like me, dropping 80 metres down the uk's tallest sculpture. but the 20 mile views across #london will be incredible, and it's for a very important cause.
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nystagmus affects at least 1 in 1,000 people, and can come with a variety of different #eyeconditions or other #syndromes, or it can occur on its own.
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it basically means you have involuntary movement or wobbling of the eyes all the time, which makes it harder to focus on things, so you have to have things close up or enlarged in order to see them clearly.
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it's a lifelong condition for which there is no known cure. so your money will help to fund pioneering research into nystagmus at #moorfieldseyehospital & #universitycollegelondon, which has the potential to benefit many thousands of people living with the condition.
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you can #donate on my @justgiving #fundraising page from anywhere in the world at:
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justgiving.com/welleyenever
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in the uk you can also text wena80 followed by a space and your amount to 70070 - e.g. wena80 £5. you can donate £1, £2, £3, £4, £5 or £10 in this way.
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text #donations are free for vodafone customers, while other networks may charge, so do check your standard rates. but your entire donation amount will go to the #charity.
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also in the uk, you will be asked if you want to claim #giftaid on your #donation. if you're a uk taxpayer, please say yes. the government will then add 25% on to your donation at no extra cost to you.
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if you do donate, thank you ever so much, it’s hugely appreciated! and if you can't donate, that's fine, but if you can share my justgiving page around to help me raise awareness, that would be fantastic.
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see my #blogpost at welleyenever.com for more on why i'm doing this. cheers for the support!

comment 0 star 23 2 days ago

昨日の昼からと今日で、マフラーの続きやってました!!
でも途中から、最後のサイレンサ➰とうまく繋がりませんで😰
次回、方向変えて再トライです😝

で、得意先のボディ屋さんに頼んで、作ってもらってたcチャンが出来たんで、それを使ってロアアームの延長にトライしてました😄
cチャンは安全を考えて3.2mmをチョイス その両端にぶった切ったアームを溶接して、その4面に3mmの鉄板を溶接しました。
あいかわらず、 ダンゴムシみたいなモリモリ溶接になってしまった😅
はたしてちゃんと付いてるのか心配です。

#サバンナrx3 #mazdarx3 #savannarx3 #syndromes #アストロプロダクツ #100v半自動溶接機 #aさんからの借り物 #薄いビードの溶接がしてみたい #ほんとは4cm延長したかったけど、強度が恐いんで3cmで
#片方のアームで半日かかった😵
#足腰がヤバい😵😵😵

comment 0 star 30 2 days ago

“my voices have tourettes” tonight at @secret_cellar_reykjavik
mvht is a #standupcomedy show that features #comedians with #disorders and #syndromes as a way of #raisingawareness in a fun way!

comment 2 star 17 5 days ago

#telomerase #genetherapy treatment of #age-related diseases and #telomere #syndromes does not favor #cancer development
september 26, 2018
miguel a. munoz-lorente, paula martinez & maria a. blasco
telomeres are protective structures at the ends of #chromosomes. they consist of tandem repeats of a #dna sequence, which in all vertebrates is #ttaggg, bound by a six-protein complex known as shelterin that exerts the protective function. telomeres shorten every time a #cell divides, and when they become critically short, this induces a persistent dna damage response (ddr) at chromosome ends which can jeopardize cell viability.
in the context of the organism, telomeres shorten as our cells divide to regenerate tissues until critical telomere shortening impairs tissue regeneration and contributes to aging-associated pathologies. mutations in genes involved in telomere maintenance are associated with a group of diseases known as “telomere syndromes,” including aplastic anemia and idiopathic pulmonary fibrosis. the main mechanism for telomere maintenance is the enzyme telomerase. telomerase elongates telomeres by de novo addition of ttaggg repeats onto chromosome ends. telomerase is highly active at the #pluripotent stage during #embryonic development but its expression is largely silenced after birth with the exception of some adult stem cell compartments. telomeres shorten with aging in all cells and tissues including stem cell compartments. in contrast, cancer cells reactivate telomerase to avoid critical #telomereshortening and to sustain indefinite #celldivision.(to read the full article please visit our website)

comment 0 star 19 2 weeks ago

Periodontal disease bacteria may kick-start alzheimer's "long-term exposure to periodontal disease bacteria causes inflammation and degeneration of brain neurons in mice that is similar to the effects of alzheimer's disease in humans. periodontal disease may be an initiator of alzheimer's." read here: https://today.uic.edu/periodontal-disease-bacteria-may-kick-start-alzheimers

join 2019-#microbiology #conferences
#abstract submissions are open now!
visit for more details: https://www.lexisconferences.com/microbiology-events

#alzheimerresearch #dentistry #dementia #disorders and #syndromes #bacteria

comment 1 star 1 2 weeks ago

Monday😏
#mondaymotivation#mondaymood#mondaysyndrome#mondaymorning#syndromes#newweek#newweekmotivation#newgoals#workworkworkworkwork#workhard

comment 0 star 20 2 weeks ago

今日は職場のバーベキューやったけど、帰ってきてすぐ作業!
時間がな➰い😰
汎用の虫眼鏡を買いまして、サバンナにフィットするように加工しまして、スプレーでシャ➰ 牽引フックできた😄
続いて気になっていた、スタビとメンバーの接触!
動きがぎこちなかったんで、当たる所をサンダーでカット✂
ついでに普通のボルトから黒ボルトにチェンジ
あまってた材料と、パイプでマフラー作ります。
11月のマツフェス間に合うかな➰😝 #サバンナrx3 #mazdarx3 #savannarx3 #syndromes #牽引フック #自作マフラー #ホームアークナビ #当時10000円 #30年前にtさんに買ってきてもらった溶接機

comment 0 star 36 2 weeks ago

Day 5. almost caught up :3 ><><><><><><><
#inktober #inktoberlist #diseases #syndromes #art

comment 0 star 18 2 weeks ago

Welp day 4 *cough* on day 6
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#inktoberlist #inktober #diseases #syndromes #art

comment 0 star 24 2 weeks ago

Hm.. here’s day 3. okay let me explain. i’m skipping between different lists because i’m a marshmallow. kfksnwkdowjw please don’t m****r me. ><><><><><><
#inktoberlist #inktober #diseases #syndromes #art

comment 1 star 18 2 weeks ago

We're close enough for people to think that we are bis. 😂 3/3

#vscofilter #vsco #vscoedit #vscocam #vsco_hub #vscogood #vsco📷 #vscobest #vscolove #vscoonly #vscomood #vscoph #vscophile #syndromes #fam #gals #friends

comment 3 star 61 3 weeks ago

We're close enough for people to think that we are bis. 😂 2/3

#vscofilter #vsco #vscoedit #vscocam #vsco_hub #vscogood #vsco📷 #vscobest #vscolove #vscoonly #vscomood #vscoph #vscophile #syndromes #fam #gals #friends

comment 0 star 30 3 weeks ago

We're close enough for people to think that we are bis. 😂 1/3

#vscofilter #vsco #vscoedit #vscocam #vsco_hub #vscogood #vsco📷 #vscobest #vscolove #vscoonly #vscomood #vscoph #vscophile #syndromes #fam #gals #friends

comment 0 star 25 3 weeks ago

Buildings that are stricken with mold are dangerous for our health, and often times we live in them without being aware. if any of these symptoms seem familiar to you, there is a chance you could be living with mold. this mold often stems from the ac units. regular cleaning and disinfection are necessary. call us today to schedule your appointment. —————
#illness #health #healthylifestyle #syndromes #sickness #oc #hvac #sickbuildingsyndrome #newbuilding #newhouse #uae #hvaccleaning #mold #yourhealth #cleaning #services #abudhabi #reemisland #dubai

comment 0 star 25 3 weeks ago