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Instagram Public Photos with #lupus

At this time a year ago, every appointment i had was meticulously planned...and i had zero clue. 🤨
i thought it was normal and efficient of my infusion nurse to want me in every 28 days.
i listened when everyone pushed for me to finally try botox for migraines.
i reluctantly got cortisone injections in my hips at exactly three months because my family told me it would help.
i listened to all of the advice.
little did i know, it was all to make sure i was ready for a surprise vacation, and then a surprise proposal...and maybe even a surprise wedding.
not many people were in on it...but my doctors and nurses were. considering they’re such an integral part of my life, they kinda had to be. so danny made sure there were no scheduling conflicts and no cancellations. i was in the best shape i could’ve been in when he sprung a surprise disney trip on me. (...and a proposal...and a wedding 😏)
there are doctors and nurses out there who are more than just your medical professionals. they truly care about your life. and i feel so lucky that they helped make my fairy tale a reality. ♥️

comment 55 star 701 16 hours ago

A great reminder from @kshealthjourney to "be kind to everyone, no matter what they look like" because not all illnesses or disabilities are visible.
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@kshealthjourney says: "one of my favorite quotes is: 'be kind, for everyone you know is fighting a battle you know nothing about.' i have dealt with death stares, rude comments, been yelled at more than once and been treated like a piece of dirt because i don’t have the 'look' of someone who people think of as disabled. well, look at the photo on the right. i look like a young, healthy and vibrant young woman.
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people simply can’t comprehend what it is like to be chronically ill for most of your life. people can’t comprehend what it’s like to go grocery shopping and have to leave all the food in your car because you don’t have the energy left to bring it in and put it all away. people can’t comprehend what it’s like to be yelled at by totally random strangers because “you should be ashamed of yourself” for parking in an accessible spot. they look at me and their heads do not even consider that i could have had eight spine surgeries and that i live in a level 7-9 pain daily.
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this is something that i have dealt with the entire time i’ve been chronically ill and it can be really demoralizing. i had someone make a comment to me for parking in an accessible spot three weeks after two major spine surgeries in 10 days. since my spine surgeon didn’t want me wearing a back brace, i 'looked' okay to her apparently, so she felt emboldened to say something. i share this because i know that some people following me aren’t aware of this. just remember: not all disabilities are visible. i genuinely hope this helps people to understand that even though someone looks a certain way, it doesn’t mean much of anything. be kind to everyone, no matter what they look like."
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#invisibleillness #mentalhealth #mentalhealthawareness #chronicillnesswarrior #mentalhealthmatters #mentalhealthday #chronicfatigue #chronicillness #spoonie #spoonielife #mentalhealthwarrior #mentalillness #fibromyalgia #fibro #lupus #ptsd #cancer #disability #eatingdisorder #recovery #ehlersdanlossyndrome #potssyndrome #endometriosis #endowarrior #depr

comment 51 star 1,889 Yesterday

Every time ash and i have tried to go away for our anniversary i’ve ended up in hospital (take prague for example, last year, tonsillitis turned into quinsy and an emergency procedure and flight home less than 24 hours after we arrived!). well mykonos was a first! no emergencies! i had some trouble with my stomach (as expected) but no hospitals! no infections! only a cyst in my b****t but that was manageable. it’s s****d that i’m feeling so grateful to my body for allowing me this long weekend. i hate the amount of anxiety associated with a trip away. the worry of being sick, the worry of my immune system, the worry of my pain and then the worry of my worry. the fear of the food, the air, the bed linen, the pool - the germs. but i lived as freely as i could and i loved it.

comment 59 star 1,154 Yesterday

5 reasons i say no to hormonal birth control:
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1. the birth control pill is an independent risk factor for subsequent prescription of an antidepressant.
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"in a nationwide prospective cohort study of more than 1 million women living in denmark, an increased risk for first use of an antidepressant and first diagnosis of depression was found among users of different types of hormonal contraception, with the highest rates among adolescents” (skovlund et al., 2016).
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adolescents had an 80% increased risk of being prescribed an antidepressant after starting combined o**l contraceptives and an 120% increased risk after using progestin-only pills.
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2. studies demonstrate that o**l contraceptives induce significant depletions in folate (vitamin b9), riboflavin (vitamin b2), pyridoxine (vitamin b6), cobalamin (vitamin b12), ascorbic acid (vitamin c), tocopherols (vitamin e) and the minerals magnesium, selenium and zinc (palmery et al., 2013).
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these are micronutrients required for optimal detoxification, the methylation cycle, as well as mitochondrial, hormonal, immune, and neurotransmitter function.
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3. birth control also upregulates activity of thyroid binding globulin (tbg), which selectively binds and inactivates free thyroid hormone (t3).
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this leads to lower availability of bioactive thyroid hormone for its myriad uses throughout the body, including regulation of metabolism, energy, and temperature (souma et al., 2004).
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4. in addition, birth control lowers production of the anti-aging hormone dhea, which has been correlated with onset of autoimmune disease (porola et al., 2007).
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5. o**l contraceptives both promote pathologic paracellular intestinal hyperpermeability, or leaky gut syndrome, and polarizes the immune system, which may lead to the development of th1 and th2 dominant autoimmune diseases such as lupus and inflammatory b***l disease (khalili, 2016; bernier et al., 2009).
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6. we have a safe and effective alternative with @daysyfertilitytracker which us 99.3% effective in pregnancy prevention when used properly.
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check out my takeover on @_doctor.g_ stories to learn more about the dangers of o**l contraceptives! 🤓

comment 158 star 915 12 hours ago

Everyday is a battle. for everyone! whether you are putting in a full day of work or can’t get out bed, you are fighting! you have chosen to give this day all you have and you have decided that giving up is not an option. some days you’ll be on top of the world demolishing every challenge sent your way and others you’ll just be trying to keep your head above water. either way, you are a warrior. never forget it!! #fightlikeawarrior #sickfightsback ••••••••••••••••••••••••••••••••••••••••••••••••••••••
⬇️⬇️⬇️ tag a warrior you admire below to celebrate their strength!🙌






#chronicillness #chronicpain #chronicfatiguesyndrome #childhoodcancer #cancerwarrior #invisableillness #autoimmunedisease #epilepsy #ehlersdanlossyndrome #endometriosis #dysautonomia #spoonie #scoliosis #fibromyalgia #crps #crohnsdisease #colitis #tubie #cysticfibrosis #type1diabetes #gastroparesis #migraine #mentalhealth #anxiety #eatingdisorderrecovery #lupus #lymedisease #autoimmunedisease #bodypositive

comment 145 star 2,660 2 days ago

I consider that our present sufferings are not worth comparing with the glory that will be revealed in us. romans 8:18💙💙.
#alopecia #alopeciaareata #hairloss #polycysticovariansyndrome #lupus #hairtrauma #naturalhair #relaxedhair #womenscuts #survivors #shameless #free #cincinnatihairstylist #cincinnatihair #nofilter

comment 18 star 140 23 hours ago

Procrastinating cardio with.. cardio? i’m sure this is completely coach approved 💯 skibidibababa 😂🕺🕺#thanksjosh #thisisforyoujohnbologa #skibidichallenge (ps it’s been 84 years since i’ve worn boots)

comment 106 star 496 5 days ago

Putting on my #freshcleantees and about to face the world head on. are you with me?
bonus...this shirt color is the color for #lupus 💜
make sure you check out my story 🙏😊
_________
#ad#freshcleantee#cali#melvindiggs

comment 46 star 755 Yesterday

The reason i’ve been more open about my health here in insta is to remind myself that i’m not alone in this battle. there are tons of other people going through similar things and shared experience is an amazing connector. #spoonie #psoriaticarthritis #chronicillnesswarrior #ankylosingspondylitis #chronicillness #lupus #hashimotos #pcos #scoliosis #invisibleillness #chronicallyill #chronicpain #spoonielife #spoonieproblems #support #chronicillness #chronicillnesscommunity

comment 0 star 1 7 minutes ago

#repost @nuclearwarfair
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#repost @alkaline_electric_water with @get_repost
repost by @realpeterock: 💦💦💦💦💦💦💯😎 ----------------------------------------------- @alkalinehuman1 purified water is- distilled, deionized and reverse osmosis. avoid. pure?! not even close 🙄🤦🏼‍♂️🤷🏼‍♂️❤️📚🎓👍🏽pay attention! why can't you stop misleading people? (he blocked me for happily trying to teach him. i wish he'd unblock me. great account minus the distilled water misinformation 🤦🏼‍♂️😔 ------------------------------------------------- #distilledwater #purifiedwater #detox #ionizedwater #dickgregory #drsebiapproved
#electriccellfood
#naturalvegetationcellfood
#africanbiomineralbalance
#eatwitdabeast
#vegan #plantbased #cancer #diabetes #multiplesclerosis #lupus #trigeminalneuralgia #sciatica #hernia #gout #fibromyalgia #paralysis #pcos #alzheimers #eczema #psoriasis #springwater #health #nutrition

comment 0 star 5 10 minutes ago

The face you make when you’ve been kicking #lupus in the a*s all week! 🙌🏽🙌🏽🙌🏽👏🏽👏🏽👏🏽 #lupuswarrior #lupusawareness #lupusfighter #lupuswho

comment 0 star 10 23 minutes ago

Areal yoga derslerimiz hande yıldız eşliğinde başladı
#pilatescankaya#pilatesgop#pilatesreformer#gruprefomergop#pilates cadillac#durusbozukluklari#belfitigitedavisi#skolyoz#kifoz#lupus#fibromiyalji#ankilozanspondilit#paraparazi#cp#cerebralpalsy#monopleji#piriformissendrom#ms#multipleskleroz#profilaksi#artroz#artrit#artropilastisonrasi#grupsenkron#bagdokubozukluklari

comment 0 star 12 25 minutes ago

Do you live in queens or long island?
***find me at the 25th walk-along for lupus***
🗓sunday october 23, eisenhower park
@lupusliqueens 🚶🏾‍♀️🚶🏽‍♀️🚶🏼‍♀️
http://25th-annual-walk-along-for-lupus.everydayhero.do/
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#thelupusdoc #lup_us #lupuswarrior #lupusfacts #lupusincolor #lupussupport #lupusawareness #livingwithlupus #lupusresearch #lupusresearchalliance #lupusfoundstion #lupus #sle

comment 0 star 6 30 minutes ago

🔹for great health and prevention tips and ways to reduce harmful environmental exposures, follow on twitter: @thesmarthuman and facebook: the smart human...and sign up for our newsletter at: thesmarthuman.com!
#petsofinstagram #love #pets #food #lupus #rheumtoidarthritis #tbt #nutrition #wedding #autismawareness #marketing #paleo #makeup #autoimmunedisease #foodadditives #alzheimers #prevention #cancer #instagood #selfie #cosmetics #teens #kids #prevention #autism #birthday #gym #breastcancer #breastcancersucks #friends #healthyliving

comment 2 star 13 31 minutes ago

💜🦋 fighting for the #lupus cure starts with learning more about the #disease raise your awareness 🙌💜📚💜 #educate yourself everyday 🦋💜 nobody can take away your pain, but don't let lupus takeaway your happiness 🙏 let's band together to raise awareness 💜🦋 everyday is #lupusawareness #lupus #putonpurple #lupusfoundationofamerica 🦋💜

comment 0 star 4 33 minutes ago

As dores da alma são demasiadamente mais profundas do que qualquer dor física. uma situação não resolvida, uma decepção, uma perda de alguém especial, a dificuldade de autoperdão podem trazer feridas e cicatrizes muito profundas, muitas vezes manifestadas na forma de uma doença autoimune. já parou pra pensar que somos responsáveis por nossas doenças? que somos também responsáveis pela nossa cura? posso afirmar-lhes com conhecimento de causa que uma remissão só acontece quando nos perdoamos, quando nos damos uma outra chance, quando nos permitimos entender, quando retiramos fortes amarras criadas por nós mesmos. a partir daí a comida, o combustível, o estilo de vida saudável começa a fazer efeito! alimentação saudável e atividade física não curam uma mente doente, que não se perdoa, que não quer ser curada. #nutricaoeficiente .
texto fantástico @luciano #repost #repost @dra.marilia_microfisioterapia
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#microfisioterapia #microfisioterapiagoiania #microfisioterapiaanapolis #leiturabiológica #terapiamanual #doencaautoimune #autoimune #autocura #autoperdao #doença #lupus #artritereumatoide #vitiligo

comment 1 star 11 35 minutes ago

Feeling apprehensive; here we go #lupuslife #lupusflare #lupus #nervous #thoughful #muscle problems

comment 0 star 4 35 minutes ago
comment 0 star 7 36 minutes ago

Okay keto police 👮🏻 before you come lock my a*s up- this is the best sugar free, aspartame free gum i could find; i have two cups of black coffee in the mornings ☕️ & fast for 16-17 hours before seeing patients so i need something to “freshen” the breath - one piece daily (2.5 calories, 1 g carbs) & the cool mint yum 😋
#keto #ketoqueenb71 #ketoweightloss #ketofam #ketosis #ketolife #ketolifestyle #ketogirl #lowcarb #lchf #lowcarblifestyle #intermittentfasting #lowcarbdiet #bulletproofcoffee #weightloss #weightlossjourney #weightlossmotivation #fitness #lupie #lupus #benlysta #lupuswarrior #lupussucks

comment 1 star 12 44 minutes ago