Instagram Public Photos with #invisibleillness

We can be so tough on ourselves when we can’t accomplish tasks that we used to be able to. every time i wasn’t able to accomplish something i became overwhelmed with sadness and frustration until i started to celebrate what i could accomplish rather then dwell on what i couldn’t. changing my mindset wasn’t easy, but it did help rid myself of thinking too much about my past rather then focusing on the present.

follow us @how.u.feeling for more post about living with a chronic or mental illness. our dms are always open. come introduce yourself to us and if you ever need to chat or vent we are always avail. you are not alone in your fight ❤️

comment 148 star 4,541 2 days ago

You can take your meds, eat healthy, exercise everyday, get good sleep and listen to every single piece of advice your doctor gives you and still be sick. there is no perfect formula for healing and that’s the most frustrating aspect of it.

follow us @how.u.feeling for more post about living with a chronic or mental illness. our dms are always open. come introduce yourself to us and if you ever need to chat or vent we are always avail. you are not alone in your fight ❤️

comment 111 star 4,707 3 days ago

Mornings can be tough — especially if you wake up in pain 😣
i am so sorry if you are already suffering and dreading/questioning how you’ll endure the day...
when living on the rollercoaster of chronic illness🎢 it’s an unknown whether or not your suffering will dip or rise 🤷‍♀️
although pain levels are uncertain, you *can* work to control your mindset and reaction to what’s happening to you 🤗
think of yourself as your own artist, shaping your responses to inputs you *don’t* have any control over to define reality in a more constructive way 👩‍🎨 by intentionally reacting to what’s happening to you, you can turn around a “bad” day and make it more bearable 🐻
my fav practices include offering myself compassion 🥰, listening to a fun audiobook 🎧 and enjoying some nourishing food or tea ☕️ ps don’t forget that this pain is not your fault!!! #selfcaretips #selfcompassion #selfkindness #painmanagement #copingskills #mindsetmatters #mindfulliving #selfhealing #seethegood #mondaymotivation
via @twentysevenlkld

comment 65 star 2,323 Yesterday

Some of you know already, i had to get emergency surgery yesterday to remove 2ft of my small intestine. the procedure was scheduled for march 17, but i guess my body couldn’t wait any longer. luckily the surgeon was able to remove all active inflammation and scar tissue from my gut (caused by crohn’s disease) so i should be feeling a lot better from now on. i’m thankful for all the thoughts and prayers in my behalf. my wife @mariajosewilder has supported me every step of the way 💜
if you’re having a rough time, try to remember that it’s a blessing to be alive. there’s always something to be thankful for. we humans have flaws, but life is so great 🦥


#crohns #crohnsdisease #crohnswarrior #crohnsawareness #crohnsandcolitis #ulcerativecolitis #uc #ibd #ibs #invisibleillness #chronic #chronicillness #chronicpain #surgery #surgeryrecovery #bowelresection

comment 27 star 290 Yesterday

The accuracy though.
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those after s*x and o****m flares are not a vibe and they are constantly ruin my vibe.
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#myvaginaneedstobehave

comment 89 star 1,062 Yesterday

Today was the migraine workshop we attended for @lyfebulb in nyc. we had the most amazing time meeting fellow migraine warriors & the amazing team that is lyfebulb. being listened to from a patient’s perspective left us feeling so empowered & hopeful for the future of medicine 🙏🏻 thank you for having us @migrainelyfe ! now back to the hotel to crash for the rest of the day - this 3 hour time difference is throwing us 🥴

comment 12 star 436 Yesterday

I’ve always been a little bit awkward. while my sister was modeling in japan, i was behind the scenes making these faces and snorting at people. 🤦🏻‍♀️ it’s safe to say they never really wanted me to join.

the older i got the more i understood about myself and so many things made sense.

i primarily use this page to talk about being a mother raising neurotypical children. but when i shifted my account a little, i asked what you’d like to hear from me. some of you responded to talk about my mental health in addition to my children’s.

i’m an open book, so it’s no problem to talk about myself. it just seems uninteresting. 😂😂 so we’ll see how this goes. i’ll start doing more posts about me, along with my girls, and if you like it...i’ll keep it up. **side note.....thanks for all the support and love. you’ll still “see” kim in my feed, as i’ll never forget her and her influence will never leave.**

comment 10 star 500 Yesterday

Every day i am surprised to know that jodie is mine. it’s hard for me to comprehend that someone so absolutely perfect is mine. i still haven’t understood what i did to deserve her but i’m honored by her very presence. she’s truly the best gift i have ever been given. i personally don’t believe in god, but if he exists, i will thank him for her and her only. ~
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#servicedog #sdit #servicepup #servicefloof #dogtraining #goldenretriever #akc #dogsofinstagram #psychiatricservicedog #medicalalertservicedog #notalldisabilitiesarevisible #syncope #mentalillness #serviceanimalsunite #servicedogtraining #servicegolden #servicegoldenretriever #goldenretrieverpuppy #norcalservicedog #disabledyouth #disabledandproud #invisibleillness #invisibledisability #bettertogether #disabilityawareness #thedodo

comment 4 star 150 23 hours ago

• til death do us part •⠀

exactly one week ago today i made the ultimate commitment. i underwent a proctectomy aka the barbie b**t surgery to remove my bum and therefore keep my stoma forever. ⠀

this week has been tough but i am tougher. i am so happy i made this decision and went through with this procedure. i have taken back control over my life and i’m not looking back. ⠀

if you or someone you love is trying to make this decision, take your time. educate yourself. talk to others and ask any question that comes to you. i am an open book and will be more than happy to answer any questions you could throw at me. ⠀

also, can we just take a minute to recognize this outfit that is both cute and comfy?! ⠀

#ulcerativecolitis #uc #ibd #chronicillness #invisibleillness #crohnsdisease #crohns #autoimmune #ileostomy #nocolonstillrollin #spoonie #cd #chronicallyill #youtube #vlog #dailyvlog #strong #warrior #invisible #visible #chronic #ibdwarrior #awareness #brainfog #ostomy #jpouch #barbiebutt

comment 27 star 312 Yesterday


𝑩𝒆 𝒃𝒓𝒂𝒗𝒆 𝒆𝒏𝒐𝒖𝒈𝒉 𝒕𝒐 𝒉𝒆𝒂𝒍 𝒚𝒐𝒖𝒓𝒔𝒆𝒍𝒇 𝒆𝒗𝒆𝒏 𝒘𝒉𝒆𝒏 𝒊𝒕 𝒉𝒖𝒓𝒕𝒔

tomorrow will mark exactly one week on aubagio and it’s been a rough ride but i'm hoping my body is adjusting. i’ve experienced a range of side effects i’ve lost 8 lbs in 6 days, rashes, diarrhea etc. i’m struggling with is nausea the most! anyone have tips or tricks to battle nausea !? #aubagio #aubagiotherapy #multiplesclerosis

comment 1 star 0 2 minutes ago

Being sick is hard. there are some beautiful, life affirming moments scattered throughout the difficult ones, but there’s no denying that it’s rough. my body goes through so much. my mind and heart go through so much. but i’m usually so quick to say “i’m good, how are you?” when asked how things are going. sometimes that truly isn’t a lie. some days are really good days where i am afforded lots of lovely distractions from the pain and fatigue. but somedays s**k and i wish it was easier to say that out loud. life is complicated. being sick is complicated. it’s not always okay, even if i laugh and tell everyone else that i’m falling apart but it’s fine, ha ha, it’s all good. ⁣⁣
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it’s really easy for people with chronic illnesses to be the ones who feel they need to comfort others, who need to make this more palatable because it’s so messy to be sick in a way that can’t get better. i do it all the time. sometimes it isn’t a big stretch. it’s often so easy for me to see the bright side and that’s something i generally love about myself. but always reaching for that greener grass can also rob me of the time i need to just sit in that dried up yellow field, to feel the discomfort, to grieve.⁣⁣
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it’s not easy to let myself be vulnerable and to admit when things are difficult. but it always means so much to me when others open up about their struggles and i see my story in theirs. so i will try harder to admit when life feels a bit s****y and my chronic illness is kicking my ass. and i will try harder to put my guard down and let others comfort me instead of me cracking jokes about my cracking joints to cheer everyone up about the downfall of my body. ⁣⁣
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it’s been a hard week, so i’d like to officially go on the record and say that the past 8 days have genuinely s****d and being sick is a huge drag. ⁣

id: a white background with rainbow text in the middle that reads: being sick is hard and you are allowed to feel sad about it.

comment 1 star 8 4 minutes ago

In an effort to turn vanity into happiness after a few months of hair neglect, all the #spoons were spent using four colors of #articfoxhaircolor. still feel the need to hide sad exhausted puffy skin behind my phone though... baby steps. 💜

comment 2 star 0 6 minutes ago

2.26.20. “that though the radiance which was once so bright be now forever taken from my sight. though nothing can bring back the hour of splendor in the grass, glory in the flower. we will grieve not, rather find strength in what remains behind.”
-william wordsworth
•••
i’m desperately trying to hold on... to get through all of the pain this life brings. survive it. cope with all i have lost and all that will never be... hope that this life will one day be full of joy and peace, not suffering.
but things have been rapidly deteriorating - making me question how much more i can handle...
•••
my symptoms with me and pots have intensified greatly. i’m struggling more and more to maintain a proper blood volume. no matter how much sodium and fluid i get in, that i take all of my medications as scheduled, it’s never enough anymore...
i feel *beyond* weak. i struggle to sit up in bed, follow along with conversations, read a book, and just typing this is taking me days and feels so incredibly strenuous... it’s like my brain is swimming. drowning with each synapse all muddled together.. i forget everything, lose words, and get confused really easily...
•••
i used to pride myself on my intellect. my use of language, ability to process things faster than my peers, argue my side clearly and effectively in debates, etc. but now... nothing makes sense. and these are only a few of the debilitating cognitive symptoms i suffer from...
•••
i don’t even feel alive. it’s like my life is already over but my body just doesn’t know it yet.. i’m trying to be grateful for what i can - the little things i *do* have - but that is feeling harder and harder to do...
but still, i keep trying.
every second of every day, i try...
•••
tw❗️ [talk of suicide]
•••
i’ve nearly ended things a few times lately... i’ve gotten through it and am in a more stable place right now, but each thing to crumble beneath me causes me to sink back down - dragged further and further into the dark😓
this life.. it can be literal hell on earth. it takes every ounce of life within you and tries to shred it away... ripping apart your very soul.
so finding peace and joy can feel impossible, but i’m doing it.
i will🖤

comment 1 star 1 7 minutes ago

Pelvic floor physio ⚡️
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meet whitney! whitney is my physio.
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if you have endometriosis and you don’t have a pelvic floor physio, you need to get one...
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whitney helps me with exercises to relax my pelvic floor and also, with my chronic back pain. .
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by relaxing your pelvic floor you have a better chance at decreasing your chronic pelvic pain in soooo many ways. eg. pain with intercourse! .
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this is something i struggle with daily, and it is hard work. unfortunately, with this illness we need to put in a tremendous amount of effort to get better and having a physio plays a huge role in our road to recovery. .
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do any of my fellow endo sisters have a pelvic floor physio? do you find it helps? please let me know, and if you have any questions, i’m always here for a chat.✨💕
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#endometriosis #endowarrior #endometriosisawareness #periodproblems #period #periodcramps #endo #endobelly #endoflare #endosisters #thisisendometriosis #chronicillness #chronicpain #chronicpainwarrior #1in10 #mentalhealth #chronicfatigue #hospital #emergencyroom #painrelief #invisibleillness #pelvicfloorexercises #pelvicfloorphysicaltherapy #pelvicfloordysfunction

comment 0 star 9 9 minutes ago

Protein powders
we know meeting our protein needs is super important, but it can be hard to eat enough food for this.

there is nothing wrong with adding a protein powder to your food or drinks as it doesn’t add bulk and make it more of an effort to eat. it may also help with digestion as the body doesn’t have to work as hard to do this.

if you need help finding one that works for you, feel free to get in touch!

comment 1 star 2 9 minutes ago

F o o d
growing up i used to take pride in the fact that beside for the odd strange stuff like honey, cream and bananas, i could eat almost anything. it was amazing being able to eat something and not worry how it'll affect me later on.

but now, as is common with people who have chronic illnesses, food is something i have to be cautious of quite frequently.

it's not as easy as avoiding certain triggers because one day those triggers cause me to spend three days in the bathroom and a different day they just make my stomach upset for a few hours - or barely any effect.

it's a long and tedious learning process i never thought i'd have to partake but here we are. until i do a full elimination test, complete diet change and lifestyle modification, i'm stuck here constantly consuming food i have only a vague idea of how my body will take it.

this bowl was delicious and only mildly gave me symptoms a few hours later. the look on my fave may be calm but i was so worried about how my body would take the yoghurt part of it - not bad 👍

anyone have any issues with food?

comment 1 star 7 14 minutes ago

Some big health changes coming for me this week. i’d be way more nervous without my amazing girl by my side. on friday, i’m getting my first port placement. i’ve never had anything like it, so i’m quite nervous, even though i know that it’s my best option if i want to keep getting my iv fluids to help my pots. with eds, i’m at an increased risk of my veins collapsing or growing too much scar tissue to be used for ivs. i want to save my veins in my arms for emergencies, and since i’m still young and will need my veins for many years, a port is my best option. but eds also means an increased risk of complications. antares can’t be with me in the operating room because it is sterile, but she can be with me in both pre-op and recovery. she will be handled by my amazing husband while i’m busy getting poked. fingers crossed for a smooth procedure friday and not too much freaking out until then 😅 -

partners 🐾
@booandchekov
@poodleaide
@medicalalertmaverick
@service_squish -

#portplacement #servicedog #traineveryday #nervous #fingerscrossed🤞 #onestepatatime #herewego #servicedoglife #servicedogs #servicedogsofig #servicedoghandler #sd #dog #dogs #servicedogtraining #noalldisabilitiesarevisible #medicalalert #dogtraining #assistancedogsofinstagram #embraceyourpets #workingdogs #dogswithjobs #tasktrained #herodogs #chronicillness #invisibledisability #servicepup #mobilityassistanceservicedog #respectthevest #invisibleillness

comment 2 star 7 15 minutes ago

Repost from @mycidpbattle
credit: @mrswelches
unsolicited advice is like being bombarded with religious ideals. i won't be persuaded, i'll only get irritated and kindly tell you to stop.

after i posted a story about ava wearing sunscreen, i was bombarded with messages about how i should just let her skin be the natural protection she needs. firstly, unless you live in australia where the ozone layer is so thin the uv and uvb index is so high, you have no say on how i look after my daughter's skin. there's skin cancer in my family, i've watched my mum and dad get melanoma cut out at very young ages. plus, honestly. i don't need to be told i'm a s**t mum because i apparently cover my daughter in cancer causing cream. no, i chose natural products but again, all you see is me parenting wrong.

i might just mentioned i worked in pharmacy for 3 years and i'm no expert but i learnt a lot from the naturopath and pharmacists there, i learnt about additives, the chemical compounds of medications, how they are made... i actually have a bit of knowledge in his department. when it comes to drug interactions how they are broken down in the system, what organs eliminate certain toxins and i know what the ingredients are on the back of a sunscreen bottle.

i have so many wonderful friends and connections on here and i openly accept advice from them.

1. because we've been speaking for a while.

2. i generally ask them for advice and

3. they actually read my posts.

unsolicited advice is annoying at the least and damaging at it's worst.
i don't need to be told i am making a s**t decision. i know you think it's coming from a nice place but unless you know my whole story. please don't offer me your juice plus, your arbonne products, your medical advice with no training.

ontop of illnesses, i don't need added guilt or thinking i am somehow living my life wrong. or worst yet, living my illness wrong.

we are all in this together, we should be offering love and support. we don't need to be bombarded with how we can cure ourselves. most of the time there's no quick fix. no magic pill. if there was, we'd all be lining up for it, selling everything we have for our health.

comment 2 star 6 15 minutes ago

"i wish i could live in a hot shower and never get out" 🛀
i think i was 12 years old when i first had that thought. i can't even try to imagine the number of times in the past 15 years that thought has repeated in my head. way too many to count.
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#justthinking #painsomnia #chronicpain #chronicpelvicpain #shower #doglife #weeklyfluff #happydog #dogsofbham #myfujifilm #fujifeed #endometriosis #endowhat #endowarrior #tbt #water #waterdog #wishing #pain #invisibleillness #invisibledisability #chronicillness #pelviccongestionsyndrome #pelvicfloordysfunction #blue #insomnia #whiteshepherd #thinking

comment 0 star 3 23 minutes ago

А ЕСЛИ НЕ ПОМОГАЕТ?

"Кто пьет опсамит, скажите, когда почувствовали улучшение? Я пью четыре месяца, и кажется, что мне хуже стало," - такое сообщение прочитала в паблике от одной из пациенток с #ЛГ.

На подобные вопросы сложно отвечать. Потому что начинать нужно с самого простого. С того, что каждый пациент индивидуален, и для каждого нужна своя терапия. Что есть препараты - блокаторы эндотелина, есть вазодилататоры, и у них разные задачи. Кому-то подойдёт #опсамит, или #траклир, или #волибрис. Или #селексипаг. Или #вентавис. Плюс #силденафил, а может быть, #риоцигуат. И когда ты начинаешь человека заваливать вот этими подробностями, ему, неподготовленному, обычно крышу рвет.

А ещё человек пугается, когда после пары лет приема силденафила слышит от врача, что надо бы добавить бозентан или мацитентан. Прям паника такая: мне хуже? Я умираю?

Опять же надо начинать с того, что во всем мире стандарт лечения ЛАГ - комбинированная терапия из двух-трёх препаратов, разных по своему действию. Это норма. А то, что вас три года держали на силденафиле, а ваше состояние не улучшалось - не норма, а некомпетентность врачей.

Мгновенного эффекта от приема ЛАГ-пепарата может не быть. Это тоже врач должен объяснить. Многие лекарства имеют накопительный эффект. Даже в инструкции опсамита написано про 12 недель. Первые объективные изменения появляются, как правило, через шесть месяцев. Но это если препарат вам подходит.

Если нет, то сейчас, к счастью, линейка ЛАГ-терапии достаточно широкая. Врач должен подобрать вам то, что сработает в вашем случае. Ответить на вопросы. Успокоить. Развеять сомнения. Вдохновить. Потому что от вашего настроя тоже многое зависит.

comment 1 star 2 32 minutes ago

Hi friends. i'm taking a little break from makeup. i haven't been feeling well lately & i have an important appointment coming up with my cardiologist on thursday. i'm hoping he can give me an official diagnosis so i can know what steps to take to further help myself & to start (hopefully) living a somewhat normal life. if that's even possible, lolz. i used to use instagram as a source to talk about my health issues but as you know, i stopped doing that over a year ago & started turning my focus onto makeup. it's been the best source of therapy for me, i can't even begin to describe how much makeup helps me, mentally. anyways, i'm thinking about trying to be a bit more open about my life again. it's hard for me to open up but it's even harder trying to hide how s****y i constantly feel & how much i go through on a daily basis. i don't know if some of y'all are down for that or not, but i'm kind of sick of pretending all the time, lolz. well now that this has turned into a whole a*s story i'll end this by saying, take care of yourselves & don't take your health for granted. you never know when your life will be turned upside down so enjoy doing the things you love while you can.🤍
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#life #embracethechaos #journeytohealth #healthproblems #openingup #invisibleillness #chronicpain #possiblepots #pots #tachycardia #heartprobs #undiagnosed #undiagnosedlife #endometriosis #endo #makeup #makeuptherapy #creepymakeup #latepost #nyxcosmetics #rimmellondon #ccbeauty #lacolorscosmetics #ardellbeauty #megavolume253

comment 11 star 17 32 minutes ago

When you're 'high-functioning' but constantly suicidal.

living is already hard and now i’ve got to throw anxiety and depression in the mix… all i can say is “good times” in the most sarcastic voice.
#highfunctioninganxiety #highfunctiondepression
#highlights #suicidalthoughts
#depression #mentalillnessisreal #mentalhealth #corporateworld #supportyourfriends #love #invisibledisabilities #invisibleillness #the_voice1111

comment 0 star 2 38 minutes ago

Well yesterday was another spent in the e.r. the problem with the illnesses i have is that i wake up every day not knowing how i am going to feel. it is a constant guessing game. sometimes new things arise and i have no idea if it will be a passing hardship or my new "normal". checked in with my doctor and due to my symptoms, bp and heart rate they sent me right over to the er. after iv fluids, a million blood tests, an ekg, a ct scan and many hours later, the doctor comes back in and tells me that everything came back normal and that i am the "picture of health". while that is great news, it just doesnt explain what was happening. i left feeling unvalidated and defeated. sometimes my frustration gets the best of me, but i have to remember that this is a journey and it wont always come easy, and there may not always be an answer. my life definitely looks different than it used to, but it is still worth fighting for. the answer is out there and although there is no cure, i will keep fighting for clarity. and take each day as it comes!

#fibromyalgia #chronicfatiguesyndrome #ehlersdanlossyndrome #chronicillness #invisibleillness #spoonie #spoonielife #butyoudontlooksick #shareyourstory #awareness #chronicpain #eds #myjourney #fibrowarrior #nevergiveup #keepfighting

comment 1 star 5 49 minutes ago

Oh my god it’s so dark but kind of true...🤭😬 #crps#chronicillness#chronicpain#spoony #spoonie#spoonieproblems#younganddisabled #disabled #disability #complexregionalpainsyndromeawareness#crpsawareness#rsd #rsdawareness #pain#burningpain #sensoryoverload #dystonia#migraines #headache#allodyniasucks #chronicillnessmemes #disabilitymemes#disabilitymemes#disabilitymeme #crpswarrior#complexregionalpainsyndrome #invisibleillness #invisibleillnessawareness#allodynia#darkhumormemes

comment 1 star 3 57 minutes ago

Day #7 on my nutrition regimen!
day #1 of being back in the gym!
__________________________
i have made it 1 week in phase one of my nutrition regimen.
week 1 focused on cutting out all major sugars and obvious treats, desserts, and sweet snacks.
week 2 starts tomorrow and will cut out grains (mostly gluten grains) leaving rice and oats in moderation.
week 3 will cut out all sugars besides honey and this phase of the regimen will be maintained long term.
__________________________i’ve already been off dairy and nightshades for a long time now so those were not real adjustments.
__________________________
my knee is killing me after today’s workout and my lower back is achy... but i made it to the gym and even though my movements were slow, at least i was moving!
#success #exercise #crossfit #training #trainingforlife #eds #invisibleillness #spoonie #chronicillness #servicedog #gsd #mastiff #gymlife #healthylife #healthylifestyle #fitgirl #workout #workhard

comment 1 star 12 1 hour ago
comment 0 star 6 1 hour ago
comment 2 star 11 1 hour ago

Chronic pain sufferers.
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join the shiane wellness community by following us here on instagram. we provide support, understanding, a sense of community, tips and natural pain relief. you are not alone. .
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#edgarcayce #chronicpain #castoroil #castoroilpack #shianewellness #castoroilbenefits #naturalpainrelief #antiinflammatory #wellness #naturalmedicine #chronicillness #backpainrelief #backpain #painsufferers #youarenotalone #wellnesscommunity #invisibleillness #chroniclife #painsomnia #painmanagement

comment 0 star 6 1 hour ago

Empower.
the #2020census could impact funding vital to programs that individuals with disabilities rely on every day. counting everyone ensures an inclusive, accessible future for all.
// 📷: @cacensus
#diversability #disabilitycounts2020 .
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[image description: a man in a wheelchair with a woman behind him are smiling and facing a young boy. block text on a teal background, “an inclusive, accessible future. 2020 census.]

comment 1 star 42 1 hour ago

#notetoself and to all struggling warriors ot there

comment 3 star 7 1 hour ago

When gracie was little she was exposed to an excessive amount of fluoride that lead to discoloration of her tooth 🦷 enamel. as her mama, it broke my ❤️ when i learned where i had went wrong. as a young mama, i thought i was helping but i was unknowingly harming her long term health 😭
personal products was one of my top items i replaced when i “woke” to all the dangers.
thankfully, gracie enjoys brushing her teeth and doesn’t want to stop 😆 and that is something i’m definitely not complaining about.⁣ no cavity 🦷 club is a great one to be in! ⁣
did you know that a majority of brands of toothpaste contain harmful ingredients? the list below are ingredients that i recommend you look up yourself. ⁣
❌fluoride(known neurotoxin) ⁣
❌synthetic dyes ⁣
❌synthetic flavors ⁣
❌sodium lauryl sulfate⁣

sometimes we don’t know where to start when it comes to wanting to choose healthier and safer options. sometimes it could be overwhelming. but start small. start with educating yourself. looking up these ingredients listed and knowing the adverse reactions to them will help you know what to avoid. ⁣

i hope this helps!!! 😘
#healthylifestyle #healing #healingjourney #momsofinstagram #daughtersofinstagram #daughters #invisibleillness ##knowbetterdobetter #healthykids #healthyfamily #brushyourteeth #brushandfloss #oralhygiene #toothpaste #healthy #healthyliving #healthyteeth #healthygums #momshelpingmoms #happykids #happykidshappymom #mamasgirl #momslife💕 #momssupportingmoms #moms #floss #flosslikeaboss #dentist #nocavityclub

comment 0 star 3 1 hour ago

Posted @withregram@between_the_gardens simple truth

i haven’t any wisdom
of my own to share.
i haven’t any problems
i cannot solve with prayer.
i haven’t any weakness
that god refused to bear
on the cross.

i haven’t any twinkle
others long to see.
i haven’t any haven
or any place to be.
i only have the power
god released in me
at the cross.

i haven’t any real dreams
except to see his face.
i haven’t any thank you
worthy of his grace.
i haven’t any reason
why he should take my place
on the cross.

on my own, i’m nothing,
a heart without a soul.
on my own, i’m rudderless,
a journey with no goal.
on my own, i’m wasted
but god has made me whole,
through the cross.

written by: beverly hover .
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#christ #christianquotes #church #christian #jesuschrist #verseoftheday #jesusislord #yahweh #dailyverse #bibleh #faith #biblescripture #flareup #chronicfighter #inchrist #joy #chronicfatiguesyndrome #myalgicencephalomyeliytis #chronicillness #chronicpain #invisibleillness #autoimmunedisease #pots #multiplechemicalsensitivity #fibromyalgia #depressionhelp #anxietyrelief #hemipheleticmigraine #dysautonomia

comment 0 star 5 1 hour ago

Chronic illness related fatigue is the most draining, emptying, painful, brain-blocking, no-real-words-to-describe, life-haulting thing i've ever been cursed to feel. i'd rather recover from six surgeries, all with complications, and have seven of my periods in a row at the same time than have this with no end in sight for the rest of my life. it just sucks. shut in year numero tres is under way.
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and, yes, i am draining myself to carefully do everything in my power to help myself. ironic, really.

comment 1 star 6 1 hour ago

2020 v 2013. in the last 7 years i discovered how to actually do my makeup, lost all my hair then regrew it, came off the steroids that made my face look like the moon, lost a few organs and never grew out of my goth phase 🖤

my entire life has changed since the right photo was taken and even though i’m now a million miles away from being that sick little kid, i still can’t sleep the night before i have a hospital appointment which is really inconvenient since i normally have multiple a week. turns out you’re never too old for nerves!

comment 1 star 19 1 hour ago

Helpful boys running errands today ❤️ ⁣

mochi no longer has the drive to work like he used to, but he still enjoys going out to pet friendly locations with me when possible. ⁣

raiden, on the other hand, was a little confused why mochi was with us 😂

comment 1 star 61 1 hour ago

I love finding ways to pair up my knits with other clothing. i working on making my wardrobe smaller.
this is a dress from the real canadian superstore (purchased 11 yrs ago) paired with my modfied snowball sweater. what is modified? i did not add the bobbles around the chest and shorted the sleeves.
i felt with the colours i picked for yarn, a more warmer feel was needed! i am very grateful that @ariannafrasca82 let me test knit. please check out the hashtag #snowballsweater to see all of the amazing versions of this sweater!

yarn : @eweandiyarn
pattern by @ariannafrasca82
#testknitter #knittersofig #handmade #519 #handdyedyarn #bodypositive #loveyourself #loveyourbody #summerdress #knittedshirt #makersgonnamake #dothework #selfcare #anxiety #depression #invisibleillness #patterntester #influencer #brandambassador #tricot #strikke #slowfashion #selfishknits

comment 8 star 31 1 hour ago

The face i love looking down at 🥰

comment 2 star 35 1 hour ago

#pushup4ms day 12
1:00 minute hold.

i challenge you to hold a 1-minute pushup and post the video with #pushup4ms
i am #msstrong for cynthia iavarone

comment 2 star 6 1 hour ago

𝙄 𝘼𝙈 𝙘𝙤𝙣𝙛𝙞𝙙𝙚𝙣𝙩: 𝙄 𝙗𝙚𝙡𝙞𝙚𝙫𝙚 𝙞𝙣 𝙢𝙮𝙨𝙚𝙡𝙛 𝙖𝙣𝙙 𝙢𝙮 𝙖𝙗𝙞𝙡𝙞𝙩𝙞𝙚𝙨.


that definitely wasn't true about my barre skills coming into this program, but now after 6 weeks i believe my kicks, leaps, and lifts are higher (even when they aren't), my balance is better (even when it isn't), and my fluidity and grace are at all-time highs (ok...just 😂😂 with me). seriously though...i feel like i'm doing amazing...just ask me 🙌

comment 1 star 6 1 hour ago

Happy mardi gras 2020 and we will soon be enjoying other events as spring comes closer. the temptation for having a drink can most definitely be around when engaged in fun times. when taking any medication, it’s always a good thing to check with your doctor if an alcoholic beverage is a good idea. for those taking medications for epilepsy, depression, and mental health issues, it can be a real risk. it used to be accepted that small amounts of alcohol wouldn’t change the amount of seizure medicines in your blood or the activity on an eeg (electroencephalogram). many medications used to treat seizures (anticonvulsants) can have severe drug interactions with alcohol. it could possibly worsen seizures and enhance some of the side effects of the aeds, so be careful and enjoy the upcoming months 💜❤️💜❤️ #stagesofepilepsy #epilepsyawareness #antidepressant #epilepsy #medications #medication #depression #seizures #seizuressuck #epilepsysucks #mentalhealth #seizetheday #epilepsystigma #fuckepilepsy #epilepsywarrior #epilepsywarriors #findacure #epilepsie #epilessia #epilepsia #epilepsi #invisibleillnessawareness #invisibleillness #epileptic #alcoholawareness

comment 4 star 14 1 hour ago

This is a group shot of the running club in from our monday night run. i’ve said this in a previous post but running was something i never thought i would be able to do after getting sick. but now, with 5 chronic illnesses im crushing runs at an 8:45/mile pace — something i couldn’t even do pre illness. adding running into my life has made me feel powerful and badass.
but as my half marathon approaches i find myself more and more nervous about how my health will hold up for the race. my runs/work outs in general are greatly affected by my monthly cycle which coincides with my half marathon.
on saturday i did the longest run i’ve ever done, 8 miles. i did it ovulating....it didn’t feel like a great run. even a mile in didn’t feel “good”. and that worries me. i know i will finish my half marathon come hell or high water but i can’t help but feel the rising panic i used to feel so often with my health issues. the utter loss of control over what you’re body is doing to you. of not being in your comfort zone when it hits you. never have i felt more in control of my body while simultaneously feeling completely out of control of anything it could pull. chronic illness am i right?

#spoonie #chronicillness #invisibleillness #autoimmune #warrior #antiphospholipidsyndrome #undifferentiatedconnectivetissuedisease #gerd #pots #orthostatichypotension #ist #mastcellactivationsyndrome #sjogrens #raynauds #potsie #dysautonomia #sick #disabilityawareness #staystrong #spooniewarrior #spooniecommunity #spooniesunite #butyoudontlooksick #awareness #raredisease #advocate #lifewithchronicillness

comment 3 star 60 1 hour ago

I prefer to know the truth because i prefer to deal in reality. i somehow always end up figuring out when i've been lied to. i may know the instant it happens, or it may take a bit longer for me to realize, but eventually, i always figure it out. so, i'd really, really rather people just be real. for more, visit writtenbydida.com #bereal #lifelessons #relationships #writtenbydida #truth #fibrowarrior #fibromyalgia #chronicillness #chronicpain #invisibleillness #invisibledisability #mentalhealth #spoonies

comment 0 star 7 1 hour ago

After yesterday’s shenanigans, i decided to bring out both boys as cavalry when i did my errands today.⁣

neither were marked as working, but we had less people bothering and approaching us. overall, people were very respectful of our space. ⁣

do you find that you’re approached more when your dog is marked or unmarked? why do you think that’s the case?

comment 8 star 260 1 hour ago

The looks, the words, the questions, the doctors, the future, my past. i am trying and hoping everyday to find a solution. i want the old me back and miss the energy and passion i was able to give. #fibromyalgia #invisibleillness #spoonielife #spooniesupport #fibrowarrior #fibrofighter #chronicillness #chronicpain #chronicillnesswarrior #fibromyalgiaawareness #fibroflare

comment 0 star 4 2 hours ago

My illness does not define me, my strength and courage does. #myfavouritequote #myaffirmation

comment 2 star 11 2 hours ago

Love f*t tuesday 🥳🎭💕
but this year i’m calling it take steps tuesday.
i have the privilege of sitting on the executive leadership council of the crohns and colitis foundation of western pa where our mission is to help support the take steps walk, the foundation’s largest fundraiser.
this morning we “took steps” into @google hq pittsburgh with our ‘village’ to learn more about ibd, including crohn’s disease and ulcerative colitis and the 3.1 million americans suffering from the illnesses every day 💟
we were fortunate to hear from our mission speaker and one of the 3.1 million himself, dr. kevin mollen, surgical director of the ibd center at @childrenspgh about treatment options, research, and support like camp oasis for kids dealing with ibd. sadly, most patients are diagnosed in their youth 😔 and with no cure (yet) becomes a lifelong chronic battle.
i’d like to personally thank @google pittsburgh for hosting, and @greensburgdio @jenmieletv2pr and hoffman wealth management for your constant and generous support 😘
and shout out to @eshecker executive director of @crohns_colitis_fdn_westernpawv for all your hard work and the friendship we’ve built over the years. you’re a true stand-up guy! 🙌
we’re lucky here in good ‘ol @pittsburghpa for the network of hospitals, physicians, clinicians, therapists, care providers, and those who just care. for all the tireless hours you put in, i can give you 3.1 million reasons that are worth it ❣️

comment 1 star 9 2 hours ago

*️⃣today’s tip⠀*️⃣ what’s the best way to clean my aligners?⠀

the best way to clean your aligners is brush them with a toothbrush and toothpaste and rinse. never use hot water on your aligners — it could permanently warp the plastic.⠀
if i have food residue (like blueberries or pasta sauce) in my mouth when i put my aligners back in, can they become stained?⠀

yes. that’s why it’s important to brush after every meal, before placing your invisalign aligners back in your mouth.⠀
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#motivation #invisalign #invisibleillness #digitalmarketing #digitalart #digital #techno #future #smile #smilemore #makersmovement #confidence #wedding #bride #groom

comment 0 star 5 2 hours ago

Positive thinking and dietary plays important roles in chronic illness management. it is not the cure all. chronic illness management is composed of a variety of factors including but not limited to: medication management, exercise, mindful body management, family support, financial resources, geographical location, etc... there is no simple and quick fix.

comment 1 star 11 2 hours ago

Well friends.... i've gone off the deep end. i have been going through all of the images i've had over the last 2 years. i've been saying for months that it feels as though something is attached to my abdominal wall, right under my ribs. i went back and looked at the liver spleen scan i had in july........ the only thing i did to edit was turn up the contrast so you can see smaller details.... then i went back and looked at a chest ct i had.... i'm fairly confident i know exactly where the csf leak is, i'm fairly certain that i have multiple disks puncturing my spine... and i'm pretty sure my liver is attached to my abdominal wall..... and not one person mentioned this to me... in any of the tests i've had. s**t is about to get real. i'm not taking shit, i'm not taking no..... i'm taking my f*****g life back.
#endometriosis #hashimotos #hashimotosdisease #autoimmuneweightloss #chronic #pcos #hypothyroidism #csfleak #pots #potsyndrome #potsawareness #posturalorthostatictachycardiasyndrome #eds #jointhypermobilitysyndrome #jointhypermobility #connectivetissuedisorder #thorasicendometriosis #invisibleillness #findingacure #lookingforacure #legalizeweed

comment 0 star 5 2 weeks ago
comment 1 star 25 3 weeks ago

These are the days that i live for! i will be forever grateful that i found this company that allows me to never miss the little things 🥰 it warms my heart watching these two grow up together. they have so much love for one another 😍🤗 #mamabear #siblings #siblinglove #specialneedsfamily #specialneedssibbling #specialneedsmom #dssiblings #dsmom #downrightperfect #downsyndrome #morealikethandifferent #nothingdown #nothingdownaboutit #livieslivinitup #bethechange #luckyfew #momboss #mombossperks #chalkcouture #invisibleillness #fibromyalgiawarrior #chronicpain #chronicpainwarrior @livieslivinitup

comment 0 star 18 3 weeks ago