Instagram Public Photos with #fibromyalgia

Can you imagine?
•••••••
the hard reality is many of us on here don’t need to imagine. this is our everyday.

i’m a positive and happy person most of the time.

most of the time i can deal with the pain.
most of the time i will follow all of my protocols without complaining.

most of the time i’ll try to lighten the mood when the nurse takes multiple times to find my vein.

most of the time i’ll smile.

but sometimes i won’t.
and that’s okay too.

i’m not going to pretend to have it together all the time.

i’m not going to pretend like having a rare neurological disease with no cure is easy.

sometimes it’s just really f**king hard.
and that’s okay.

but what isn’t okay is feeling forced to always keep it together.

it’s not okay to feel like you always need to be smiling because your real feelings make other uncomfortable.

the truth is if any healthy person switched bodies with me for 10 minutes they would probably feel like they’re dying.
they would probably beg to switch back before the 10 minute mark.

but those are the same people that will make comments like “just think positive” or “others have it worse”

i am allowed to be sad.
you’re allowed to be sad.
and when you feel happy. i hope you choose to smile.
i’m proud of you for those days that you work up the extra strength to smile despite feeling like hell.
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#chronicillness #chronicillnesswarrior #gbs #chronicallyill #fibromyalgia #cidp #fibro #pots #migraines #mentalhealth #sicklecellproblems #anxiety #eds #chronicpainwarrior #health #chronicillnessawareness #spoonielife #endometriosis #lymedisease #chroniclife #celiacdiseaseawareness #chronicpain #chronicfatigue #chronicpainawareness #lupusawareness #migraineawareness #butyoudontlooksick #ms #spoonie

comment 25 star 699 Yesterday

#awkwardspoonie // this is 100% me and as i type this i am wondering....⁠

why is it that i"m always worried about making other people feel awkward when most of the time im in level 10 pain and would literally love for my worst problem to be feeling awkward?⁠

one day i'll work up the courage to finally stop apologizing for my #chronicillness, but until then i"ll just have to satisfy myself with #chronicillnessmemes ⁠😂😂😂😂. have you learned to stop apologizing? does it help?

also, is this meme funny or does it hit too close to home 🤪?

comment 65 star 864 Yesterday

This is an important reminder to remember. a lot of time our mind plays tricks on us. we start feeling guilty and ashamed when we rest a lot instead of doing more activities. we fear and blame ourselves for wasting a day, or a weekend doing what we see as “nothing at all”. but the thing is you weren’t doing nothing, you were doing exactly what your body needed to: rest and heal. comment below with your thoughts. please share/tag a friend who needs to read this today.

follow us @how.u.feeling for more post about living with a chronic or mental illness. our dms are always open. come introduce yourself to us and if you ever need to chat or vent we are always avail. you are not alone in your fight ❤️

comment 118 star 4,269 2 days ago

#healingisntlinear // ughhh this is one of the most frustrating misconceptions for me as i navigate this whole #chronicillness thing.
i’m never sure if it’s real or in my head but i’m constantly feeling like people are using my good days against me.
do you guys get that? am i crazy or is this a real thing? how do you deal with it? help! orrrr... tag someone who needs the hint 😉

comment 78 star 677 Yesterday

These are just a few ways to help a friend out this holiday season. comment below if you can relate to any of the above. please share/tag a friend in order to bring awareness about how to help those with chronic illnesses.

follow us @how.u.feeling for more post about living with a chronic or mental illness. our dms are always open. come introduce yourself to us and if you ever need to chat or vent we are always avail. you are not alone in your fight ❤️

comment 14 star 1,336 2 hours ago

I have never met a stronger group of people in my life then those who deal with chronic/mental illnesses.

everyday you put yourself out there, fighting through all your symptoms and still find a way to be a functioning human being. so on the days or weeks that are extremely bad, it’s okay if your illness gets the best of you. it’s okay if you need to cry a lot. it’s okay if you need to cancel every plan you made. its okay to rest every moment you can. you are only human. comment below with your thoughts. please share/tag a friend today who needs to read this.

follow us @how.u.feeling for more post about living with a chronic or mental illness. our dms are always open. come introduce yourself to us and if you ever need to chat or vent we are always avail. you are not alone in your fight ❤️

comment 110 star 2,776 3 days ago

Life is hard with a invisible illness. it’s even harder when you have to fight to prove your illness to doctors, friends and family.

if you ever had to or continue to have to prove your illness (mental or physical) to anyone then they don’t deserve your time. while i understand that this is way easier said then done, you deserve to have supportive and understanding people surrounding you. you deserve to have people lifting you up instead of tearing you down. comment below with your thoughts. share/tag a friend who needs to read this today.

follow us @how.u.feeling for more post about living with a chronic or mental illness. our dms are always open. come introduce yourself to us and if you ever need to chat or vent we are always avail. you are not alone in your fight ❤️

comment 74 star 2,569 Yesterday

🙌💡💓⭐ @sovereign.roots.apothecary : "just because i am smiling and look "presentable" in regards to our cultures societal expectations doesn't mean my pain or sickness dissappear. in fact on some of my hardest days i dress up the most because it makes me feel better. also, just for education purposes asking the following questions or commenting isn't helpful and pretty harmful. esp as i have been a healthy organic eating herbalist who has always been active and is literally trying everything to feel better and get through the day:
person: "you look better"
feels like:
i don't feel better and you dont really want to know how i am.
instead say:" you look better but how are you actually doing"
person: "you should try x,y and z"
feels like: i am not doing enough to take care of myself and it is my fault.
instead say: "i am here to support you in any way you need. can i pick something up for you? or make you a meal?"
*
person: "if you really start healing your trauma and wounds you might start healing"
*
feels like:
i am not spiritual enough or healed enough otherwise i wouldn't be sick. undermines all of the spiritual growth i have walked through for the last 20 years and makes me feel worse.
instead say: nothing *
person: " sounds like a dream, which i could stay home and watch netflix all day and work from home"
why thats problematic: most days it can feel like i am trapped and very isolated not only at home but in this very strange b****y experience. esp because every night i've had 3-4 hours of sleep & am awake from 1am-6am from bladder pain flares. the amount of energy it takes to just get out of bed, shower, eat & wash dishes is a lot & quickly exhausting. which is not something i wish for anyone. i love to be home & cozy but not all the time & certainly not in pain and fatigue.
instead say: "i can't imagine what you are experincing but i'd love to hear more about it & how life has changed for you"
and lastly... *
person: "at least its not_________(fill in the blank)
why this is problomatic:
because pain is pain is pain and to make comparisons to anyone else's or any other illness is totally not okay.
instead say: nothing & listen deeply. 💕"

comment 61 star 2,227 3 days ago

So greatfull for this past year 💛 lots and lots of physical struggle but lots of laughs, adventure, love, friends and a new/old job 🙏🏼🌸🌺

comment 1 star 1 2 minutes ago

#chronicillness has a way of changing the things we can do or how we do them. & it's understandable to miss who we were and what we were able to do.
but it's also important to remember that you'll always have the entire mighty well community behind you when you're feeling like this! we've all been through similar situations, so we can support one another💚
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#mightywell #youaremighty #friendsinthefight #livemightywell #undefeated #butyoudontlooksick #invisibleillness #chronicpain #chronicillness #chronicillnesswarrior #lymedisease #lymewarrior #lymedontkillmyvibe #spoonie #spoonielife #spooniecommunity #adaptivewear #keepfighting #livingwithchronicillness #supportsystem #picc #piccline #port #fibromyalgia #ehlersdanlossyndrome #crohnsdisease #cysticfibrosis #endometriosis #lupus

comment 0 star 0 3 minutes ago

Self care sunday can just be putting on a bit of lippy to make you feel human.. you see with all my health issues i hardly wear makeup anymore as i am just so tired and in pain. everyone that knows me for longer than a year knows i used to wear it all the time.. but today we are popping to see one of my hubby's friend's and i thought i better make a little effort. no filter at all and believe me i was tempted to use one but that's not me.. i am imperfectly me 🙏

so embrace your flaws and life no matter how hard it can be.. loving how great my skin looks and feels ❤️. i might be ill but i put nourishment back into my body thanks to my range ❤️ 44yrs old with a 18yr old can do enthusiastic attitude in mindset full of wonder, a body that is like 100yrs old 😂 but mindset is everything and positivity is the way forward 🙏

it's amazing what you can do for yourself no matter what you are facing 🎉
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#mrsmindful #gratitude #thankful #bekind #imperfectlyme #instafollowers #instamood #breastcancerawareness #fibromyalgia #happiness #believe #emotions #lupus #skincare #vegan #organic #selflove #beyou #complexregionalpainsyndrome #mindset #veganskincareuk #innervoice #instalikes #antibullying #hertfordshirebusiness #hertfordshiremums

comment 0 star 2 3 minutes ago

12•15•2019
heyo everyone,
today, i want to talk about celebrating small victories. as an example, i usually go to sleep at around 7:30-8pm every night. it’s very hard to go out with friends or interact with people in person past 6pm. yesterday, i stayed up until around 9pm! it was a high energy day for me. i made two deserts and had people around me all day, which would usually burn me out at around 3pm or earlier, if i was even capable of it. i am stunned at the amount of energy i had yesterday and amazingly proud of myself.
it’s important for nondisabled people and non-spoonies to understand that, try as they might, they simply do not get how much effort goes into the simple things for disabled people and spoonies. we are always thinking about conserving energy for things later in the day or even later in the week. for a nondisabled person, making two batches of cookies might wear them out. for me, it means i will go through excruciating pain flares and feel like lead for many days afterwards. i make these decisions to expend spoons for things like cookies knowing what it will cost me, partly because i am used to everything leading to pain, partly because i don’t want to miss out on everyday experience, partly because i want cookies. but there are things disabled people have to do everyday that cost just as much spoons and nondisabled people wouldn’t bat an eye at. i can choose not to bake cookies if i’m having a bad day, but every day i have to keep myself hygienic, feed myself, and not isolate. these all take extreme amounts of spoons.
so the point of this post is, on those days you are able to do things that nondisabled people wouldn’t bat an eye at , but is very hard for you: celebrate it! give yourself credit for the things you achieve and accomplish, because most nondisabled people don’t think twice about us being able to brush our teeth.
thanks for reading💕
~xander
#chronicillness #chronicpain #invisibleillness #potssyndrome #posturalorthostatictachycardiasyndrome #fibromyalgia #spoonie #mentalillness #mentalillnessawareness #bpd #dissociation #ptsd #spoonielife #butyoudontlooksick

comment 0 star 3 3 minutes ago

I have no idea how many actual yards we did today. i did several drills and then keith and i spent the majority of time working on flip turns. can i just say, those things are freaking hard! i don’t really need to know how for triathlons, but it’s more about being master of my body. knowing when, where, how to: stroke/glide/flip/push. you know?? and, after tons of time in the deep end today, i can stand up and say....... i have no idea what i’m doing. 😂😂 #latebloomer #flipturns #ididntdrown

comment 1 star 1 3 minutes ago

I’m trying to on my first day of break with school to: 1. be filled with gratitude that i am finished with this very trying semester 2. accept the possibility that my body may be acting out due to the extreme stress of finals week 3. plan to meditate, do some self-soothing, take extra meds and see if this helps, all before we leave on our trip tomorrow to steamboat 💊💊🧪🛀🏻 seems like everything hits a c****x in terms of stress before an actual vacation (which is so rare as it is).
..............
i had actually wanted to get my nails done before the trip, but out of the possibility that it’s a reaction to hair products (?) that were used on my haircut the other night (pic 2), maybe it’s best i avoid places with toxins at the moment? 🤷🏻‍♀️ edema in lips (pics 3 & 4), has also been present (with all the hives) back again on all my major joints since that haircut. anyone out there with allergies to specific salon products know what could possibly be the culprit? i’m all out of ideas. could be the stress though too...
things we’ve “ruled out, for now”:
1. #lupus
2. #rheumatoidarthritis
3. #urticarialvasculitis
4. pet/food allergies
5. anything new in routine/new smells etc.
the problem is my doc said we can’t do skin patch testing until we can get me off of antihistamines... the ones i’m on now are: levocetirizine hydrochloride, famotidine, montekukast, hydroxyzine (these are the antihistamines i’m on and still get flare up like this...not including my other meds) #askingforafriend #medicallycomplex

comment 1 star 1 4 minutes ago

It's also why i love a new year. this has not been a good year, new diagnosis, more extra health problems, including shingles. but i keep thinking just put it behind me and tomorrow could be so much better. just keep going forward and don't look back. i'm excited that on some days i can sew my wheat bags and cut out cute fabric. i'm not making much money, i keep giving them away! lol. i love giving, i get such pleasure out of it. i love doing it for no reason at all, as a surprise. they are the best gifts to get.
🌸🌸🌸🌸🌸 fibroawareoz #fibromyalgiaawareness #fibromyalgia #chronicillness #chronicfatigue #chronicpain #invisableillness #cfs/me #cantwork #askforhelp #painmanagement #dontgiveup #chronicpainsurvivor #spoonie #disability #fibrowarrior #spoons #support #believeme #approvedillness #brainfog #insomnia #encouragement #sicknotlazy #invalid #explainingnotcomplaining #butyoudontlooksick #needmorespoons

comment 0 star 0 6 minutes ago

Self care sunday can just be putting on a bit of lippy to make you feel human.. you see with all my health issues i hardly wear makeup anymore as i am just so tired and in pain. everyone that knows me for longer than a year knows i used to wear it all the time.. but today we are popping to see one of my hubby's friend's and i thought i better make a little effort. no filter at all and believe me i was tempted to use one but that's not me.. i am imperfectly me 🙏

so embrace your flaws and life no matter how hard it can be.. loving how great my skin looks and feels ❤️. i might be ill but i put nourishment back into my body thanks to my range ❤️ 44yrs old with a 18yr old can do enthusiastic attitude in mindset full of wonder, a body that is like 100yrs old 😂 but mindset is everything and positivity is the way forward 🙏

it's amazing what you can do for yourself no matter what you are facing 🎉
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#mrsmindful #gratitude #thankful #bekind #imperfectlyme #instafollowers #instamood #breastcancerawareness #fibromyalgia #happiness #believe #emotions #lupus #skincare #vegan #organic #selflove #beyou #complexregionalpainsyndrome #mindset #veganskincareuk #innervoice #instalikes #antibullying #hertfordshirebusiness #hertfordshiremums

comment 0 star 3 6 minutes ago

6.5 weeks post op from hysterectomy and 4 days post op from cubital tunnel release surgery. arm is bruised and swollen. pain comes and goes but it will get there. changed the bandages today so no more big bulky wrap. #surgery #hysterectomy #cubitaltunnelsyndrome #ntos #thoracicoutletsyndrome #itbandsyndrome #trochantericbursitis #rheumatoidarthritis #fibromyalgia

comment 0 star 0 8 minutes ago

Wearing my #turdma today because that’s how i feel. like crap. this is all just so frustrating and doesn’t make sense and i a lot of times feel like i’m losing my mind. one day a switch was turned on and i started having extreme fatigue. a month later another switch was turned on and i was aware of every joint in my body. a couple of weeks later another switch flipped and there’s pain all over up and down my arms and legs. and a couple of weeks later another switch flipped and it’s like every nerve in my body was lit up. now nerves light up all the time. shooting pains in my feet, arms, hands, sometimes tingling in my lips and tongue. it’s all just so crazy and painful. i now experience a lot of anxiety when i’m normally not an anxious person. i’m saying all of this bc when i say i’m tired or in pain or i don’t hang out or help out this is why. its not because i don’t enjoy your company or don’t love you or don’t care. it’s possibly fibromyalgia but doctors don’t know for sure. i’m still early in the game as some people it takes years to get a diagnosis. i have had symptoms almost 4 months. i’m working on accepting that this is probably my life forever now mixed with good days and bad days with whatever this is. not every day is bad and i have so much to look forward to. god has blessed me with an amazing fiancé and wonderful parents along with great friends and family. i am so thankful for all of their support. #spoonie #fibromyalgia #readyforanswers #pain #badday #needrest #godisgood #staypositive #roughday

comment 0 star 0 9 minutes ago
comment 0 star 0 10 minutes ago
comment 0 star 1 11 minutes ago

I'm so glad its warming back up, my babies are slowly coming out of dormancy 🥰🥰 my newest additions include a string of buttons, echeveria romeo, yet another haworthia, a black prince, and a gorgeous blooming string of bananas.

comment 1 star 0 12 minutes ago

I may look okay on the outside, but on the inside i’m screaming
⠀⠀
i get this all the time
“you have what? but you look fine to me?”
⠀⠀
yes i look fine, but
❌that doesn’t mean that i’m not sick
❌that doesn’t mean that i’m not in agony
❌that doesn’t mean that i’m not in pain
⠀⠀
you never know what someone is experiencing
⠀⠀
there is a quote that says something along the lines of ⠀⠀
"everyone fighting a battle you know nothing about”
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&& i think it is so so accurate!
⠀⠀
💛this is why kindness is so important!
⠀⠀
even just a smile and some kind words could turn someones day around!
⠀⠀
why not be the light in someones life in a world that seems so dark sometimes ♥
⠀⠀
do you agree? lmk in the comments!
___________________________
#endometriosis #endosister #endostrong #endobabes #endobabeempowerment #endosisters #endometriosiswarrior #endowarrior #endometriosissupport #endometriosisawareness #endoflare #1in10 #endocommunity #endobelly #endopain #endometriosissurgery #endometriosispain #endometriosisuk #endometriosisaustralia #endometriosisfighter #youdontlooksick #chronicillnesswarrior #fibromyalgia #fibromyalgiawarrior #invisibledisease #chronicallyill #pelvicpain #chronicillnessawareness #invisibleillnessawareness #invisibleillness

comment 2 star 15 14 minutes ago

Depression is increasing, not just our awareness of it. last week i talked about inflammation and how the “fire of it can affect our bodies. we usually think of inflammation as it relates to physical pain, but inflammation can also occur in your brain. the result may look and feel more like emotional and psychological pain rather than a physical sensation.
healthy moods, a positive outlook, emotional resilience and the ability to cope with everyday stressors, depends on your brain generating and using the right balance of neurotransmitters. which you might know of as our “feel good” chemicals. researchers are now finding that inflammation interferes with the proper functioning of these “feel good” hormones which really are the building blocks to a balanced and healthy mood.

so what can we do to reduce inflammation? what we eat plays a huge role in whether we are creating or reducing inflammation. less sugar and simple carbs are a great start. i started balancing my body almost 3 years ago now, the changes i saw literally changed my health, my moods and my ability to have a life again. this is why i share, out of the ashes a passion was born to help others. if you are ready, i would love to help make 2020 the year you say goodbye to inflammation as well. #inflammation #depression #mentalhealthawareness #momlife #guthealth #autoimmunedisease #crunchymom #naturalingredients #fibromyalgia #allergies #bloodsugar #migraines #serotonin #probiotics #healthyeating #eatclean #functionalmedicine #holistic

comment 0 star 6 15 minutes ago

Feel like i've been run over by a steam roller
so much pain and i hardly did anything. i just sat and passed things to be put in bags or boxes.
fatigue is so bad too

no pictures or video because as predicted it was too dark by the time we got to the bungalow to take any, because there's no electricity until i load some money onto the key thing. that means taking the key and a code to a shop, but it was too late to go to a shop and i was so stressed and fatigued and in too much pain by then that i forgot to take the code with me

we took lots of stuff over and packed a fair amount, but really disappointed that there was lots of stuff i couldn't do because of the lack of light
wish i still had my own car, it would be so much easier. it's hard having to rely on other people, as much as i am grateful for their help. it means having to wait til they are free. feeling frustrated and anxious and exhausted and in so much pain

#farawaygirlspoonie #me #fibromyalgia #myalgicencephalomyolitis #chronicpainsyndrome #spineissues #osteoarthritis #widespreadpain #fatigue #wheelchair #disabled #chronicillness #palegirl #spoonie #depression #anxiety #gad #mentalillness  #millionsmissing #hearingloss #hearingaids #brainfog #bumblebee

comment 0 star 7 15 minutes ago

What a lovely sunset we got to witness today at our “home” for the next few months! 🥰 we are surrounded by horse farms and the horses are keeping me quite entertained. i had no idea horses were so animated. but besides the neighbor horses running and playing with each other several times a day it is so quiet out here and i love it! .
and, more importantly, i need it. having #fibromyalgia makes me extremely sensitive to stimulus, so living next to a highway for several years was really not good for my overall well being. not being able to ever fully relax is bad for anyone! i am so much happier living in the rv full time and being able to choose our surroundings for our health. #environmentaltriggers are no joke and i have to choose my activities and surroundings carefully so i don’t go into a flare. the other plus to being here is i get to spend time with my daughter and her boyfriend and my “grandsons” 🐶😻😻
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#fibroflare #rvlife #rvliving #perksofrvlife #homeiswhereyouparkit #alwaysathomewhereeverweroam #fibrofog #selfcare #farmlife #sunset

comment 0 star 7 18 minutes ago

You inspire me to explore the world on a different level thank you angel.🙌❤ billie eilish - everything i wanted. vs all the good girls go to hell.
#thewar #life #earth #elements #air #fire #water #billieeilish #future #adhd #fibromyalgia #fibromyalgie #fibrowarrior

comment 0 star 2 20 minutes ago
comment 0 star 2 23 minutes ago

•physical therapy•

friday was my physical therapy evaluation and the first words out of my physical therapists mouth were, “spinal stenosis? you’re too young to have spinal stenosis!” immediately, i felt very skeptical about the level of care i was going to receive. my first try at pt was 4 years ago, pre eds diagnosis, and it was a terrible experience. a lot of doctors are convinced that is what made some of my symptoms either present or become worse. so i didn’t really know what to expect this time around.

thankfully, as the appointment continued, i could hear her frustration with my previous doctors and i could tell she was knowledgeable about eds, pots, and a few other of my diagnoses. after a few physical tests she said there were a lot of things wrong with me.

it turns out that the bottom of my spine and hip were turned to the right, while the top of my spine and neck were turned to the left. she did some immediate adjustments to give some relief and gave me some exercises to start doing. we made some realistic goals (sit upright for 20 minutes/walk for 20minutes) and it seems she understands that my endurance is very low. she made a few more comments that upset me (stop popping fingers, your stomach is like the pillsbury dough boy, it should only take 9 days for you to get from 1 minute to 3 minute holds on these positions) but i’m trying to remain positive.

she said that nothing she did was going to make things worse, and i understand that, but my body is still flared up from the drive time (4 hours total), the social interactions, the poking/prodding, and the joint manipulation.

i’m a little worried about doing this once a week for 12 weeks, but i know that i at least have to try. this is the first time since i was diagnosed that i’m actually receiving adequate care, so i’m gonna give it everything i’ve got. hopefully this will better teach me to listen to my body as well.

if you’ve read this far, thank you for taking the time! much appreciated! as always, i’m sending love and spoons to you all💕💕💕🥄🥄🥄
what are your experiences with physical therapy? whether positive or negative, i’d like to hear your stories! please drop a comment below👇🏽👇🏽👇🏽

comment 1 star 11 24 minutes ago

I soo get this. 😢 depression is no less an illness than when i hurt my back. in fact it has taken much more private and personal strength 💪 to overcome the depression than to recover from my back injury; and that was tough, so. 😒 once you've been in the depths of depression 👥, it never really leaves you, and there is that fear of going back down the rabbit hole. the rabbit hole 🕳️ that nobody talks about 🙊, or even recognizes 🙈. but if you persevere, you will know the signs, and you will learn to manage it better. 🦉 depression and fibromyalgia walk hand in hand 🤝 , and both are ignored illnesses. 🙈🙉 and speaking from a place of unwanted wisdom, after experiencing both physical ailments and mental ailments, i can say what a boost it would be if i knew that my strength and perseverance in fighting depression was recognized by those i love. 💐🤗 just every now and then. because it's an ongoing battle in my mind and body, and although i am tired, i'm no quitter. 💪 #doyougetitnow #depression #fibromyalgia #fibro #fibrolife #invisibleillness #chronic #chronicillness #chronicillnesswarrior #chronicillnessstrong #chronicillnessawarness #perserverance #wisdom #strength #strongernow #flowerpower #brightenmyday #doyouunderstand #doingmybest #notaquitter #notafailure credit given to @fibromyalgiavoices

comment 0 star 6 24 minutes ago

I’ve said it before and i’ll say it again, god truly blessed me with putting you in my life.

as someone who deals with depression/anxiety on top of my fibromyalgia i know i can be difficult to deal with yet you’ve shown me compassion, patience and even some tough love to help me persevere through difficult times.

i’ve never known a love like this before. you push me to be a better person and i couldn’t be more thankful.

comment 2 star 6 24 minutes ago

I guess i'm gonna start making multiple versions of everything now, so here's a "light" and "dark" version for you💜
so, i'm pretty much tired of anyone trying to make chronic pain patients feel like they are wrong, or "less than," for wanting a better quality of life through pain management. i'm also no longer going to be accepting anyone acting like we don't have a right to absolutely demand better treatment, and to demand that the medical industry, and anyone who does not experience the pain, stop acting like they should be making guidelines and policies for us. all laws, rules, regulations, policies, & procedures should have to have a final approval by a panel of chronic pain patients (elected by other chronic pain patients,) who have been vetted and found to be reasonable, educated, and have either had a medical education background, or have been in the industry somehow (long-term patient care, advocacy & awareness, etc.) it's the only way to ensure that we aren't being mistreated by people who have no clue what it means to live this way. i'll be writing much more about this subject in the near future. for more "dida-isms" more on these subjects, and mental health, relationships, money, and more- visit writtenbydida.com #chronicillness #chronicpainawareness #invisibleillnesswarrior #fibromyalgia #fibrowarrior #fibrosucks #spoonielife #spoonies #cfsme #invisibleillness

comment 0 star 1 25 minutes ago

Had the best night at my christmas work do! 🎄 but i have food poisoning which is not helping the fibro 😭 #fibrowarrior #fibro #fibroblast #fibromyalgia #chronicillness #chronicpain #chronicfatigue #spoonie #spoonielife #fibrospoonie #justagirlwithfibro

comment 0 star 9 27 minutes ago

Christmas isn’t christmas in our house with out making these. we’ve made them every year since i was small and now i make them with my son #christmas #anxiety #depression #aspie #aspergers #fibromyalgia

comment 0 star 1 28 minutes ago

#cbdbathbomb 🛁
happy sun day everyone. this is my relax day after a long week with my family. i like to start my week catching up on rest. what i mean by rest is taking a hot bath with cbd bath bomb. after using this i am focus on my body by giving it rest for the rest of my day. it's like a meditation kind of day. #mindfulness.
before i go i would like to say cbd needs to be given a far shot with chronic illnesses and mental illness. it has done wonders for me and i hope for the same to my tribe. ✌

#cbd #buildaladder
#simonandmartina
#eatyourkimchi
#bathbombs
#blue
#blogger
#chronicpainblogger
#blogger
#instagram
#writing
#resting
#relax
#meditation
#invisibledisease
#spoonie
#fibromyalgiawarrior
#fibromyalgia
#cbdhealth
#cbdbenefits
#cbdoil
#cbd
#medicalmarijuana

comment 0 star 4 29 minutes ago

:
••••••••••
🧘‍♀️🤸‍♀️
••••••••••
graphiste de formation mais atteinte de fibromyalgie, je me consacre au yoga pour ma propre santé. bientôt habilitée par la yoga alliance international comme professeur de yoga sivananda, je donnerai des cours spécialement conçus pour les personnes atteintes de douleurs et fatigue chroniques. consciente des différents handicaps, je proposerai des cours à domicile (tapis non-fournis). néanmoins, je privilégie les cours en plein air au parc des buttes-chaumont car le contact avec la nature fait partie du processus d'atténuation des symptômes. le premier cours, offert, se fait obligatoirement au parc.
bienvenue dans mon univers.
••••••••••





••••••••••
#fibromyalgia #yoga #chronicpain #yogaeverydamnday #spoonielife #chronicfatigue #yogi #chronicillness #invisibleillness #yogalove #spoonie #yogainspiration #namaste #lymedisease #yogaeverywhere #fibro #ehlersdanlossyndrome #lupus #yogagirl #yogachallenge #yogalife #cfs #multiplesclerosis #endometriosis #igyoga #yogini #yogapractice #frenchyogi #frenchyogagirl #frenchyoga ••••••••••

comment 0 star 3 31 minutes ago

That’s been my life lately. especially trying to unpack everything, get ready for christmas, and at the same time try to see family. when i get home from work, i’m exhausted mentally and physically.... just let me be...
#mythoughts #chronicillness #tired #justletmebe #fibromyalgia #depression #anxiety #invisibleillness #fibrogirl #livingwithpain #spoonie #fibrosucks #sjogrens #autoimmunewarrior #tryingtostaypositive #tryingtobestrong #hope

comment 1 star 7 37 minutes ago

Terrified of an opiate’s bliss,
i never want the drugs, side-eye
anything that fools my body
out of its pain. modern-day sorcery
smothers me into a wingless witch.
quick to winter i wake up cold,
grieving the missing noise.
am i pain’s weary wife
or is she my loyal bride?
#chronicpain #myloyalcompanion #fibromyalgia #cptsd #fuckyoudad

comment 2 star 61 37 minutes ago

This episode is an important listen this time of year ( or any time of year!)
#chronicpainpuzzle #chronicpain #chronicpainwarrior #chronicpainawareness #fibromyalgia #fibromyalgiawarrior #breathe listen on apple podcasts, spotify, or wherever you listen to your podcasts !

comment 0 star 0 39 minutes ago

For over 2 years i had constant pain in my left knee, along with daily subluxations due to my hyper mobility (partial
dislocations). i have a 2 year old little girl i found that i wasn’t able to kneel on the floor to play with her, i couldn’t bend easily to look after her and i couldn't walk very well, let alone think about exercising. after a long few months of physiotherapy and getting no further forward, my only option was the surgical route, where in they wanted to drill a hole in my kneecap and place in band to keep it in the right place.
i was recommended the fibro guy by a friend who adam had helped get off crutches and become pain free. after just 10 weeks i am now able to kneel, bend, squat, and walk without pain. i can even lunge, jump, weight lift... (the list goes on!) all completely pain free! my knee is stable and doesn’t sublux any more, and more importantly, i trust my knee again.
i feel refreshed and ready to start exercising again l, and living without restrictions. i can't thank adam enough, its had a huge impact on both me and my family! ———-
adam-

i am super proud of danielle! she has came from a place where she just didn’t trust her own body anymore, especially as the knee was becoming more unstable, and more painful.

she 100% put her trust me, trusted the processes, and we dealt with the many different problems that the road to recovery has, as and when they came....and each time we moved forward together. it makes me happy knowing her little girl is going to grow up with a mum who can play with her on the floor 😊

way to go danielle, you’re a super star, you finished something most people never even start, let alone finished...you earned it 😊💪🏻 ——- #chronicpain #thefibroguy #ehlers-danlos #fibromyalgia #chronic #wheelchair #flippingtyres #pain #sublux #ed mmm

#instastar #fighter #thefibroguyfamily #fibromyalgiaisalabelnotadisease #fibro #chronicpain #migraine #headache #thefibroguy #fibromyalgia
#fibroisaculturallyadoptedlabel #hypermobile

comment 1 star 6 40 minutes ago

Finally frickin' finished...jeez!!! well this is how it is when u have fibromyalgia me and prolapsed discs and sciatica. it's been really hard getting this finished, i can see the mistakes i made...coloured in the background too soon...was a little eager to play with those colours...so we're now left with a yellow knuckle on our dudes hand. but still really please with myself. the angle/view point of the image was a challenge, never really done this before. trying to learn to do stylised hands yet couldn't help bringing in some realism which resulted in a monster hand according to my 7 year old son 😂
anyway this is my #inktober prompt 1: ring.

i wanted to do a diamond encrusted donut wedding ring being placed onto the finger of a candy bride 🍭🍫🍬👰 💕🍩 i did it, i learnt from it and i'm fairly happy with it. most importantly of all, it made me feel really happy creating this picture. i am definitely a person who could do realism. copying is my bag baby. but i actually love stylised imagery so i'm trying to learn to do that which is what is happening here.. learning.
so there we go. prompt 1 done ✔️ up next....prompt 2: mindless. so watch this space for another suprise creation. i have a fun idea in mind!

thanks for following me if u are and if not please consider following and offer your support. sharing my work with a tag is welcomed too thanks if u do.
ta ta for now guys, gem xx

#inktober #inktober2019 #donuts #wedding #weddigdress #weddingrings #bridetobe #weddingplans #fibromyalgia #fibrofighter #sciatica #disability #livingwithdisability #artistsoninstagram #cuteart #cuteartwork #windsorandnewtonmarkers #supportacreator

comment 0 star 10 40 minutes ago
comment 0 star 15 43 minutes ago

What’s in your cbd roll on?
does the manufacturer use artificial and toxic ingredients? e numbers and artificial preservatives?
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fit cbd pain freeze cbd roll on is the only completely natural, plant based, pain relief roll on available in the u.k.
we don’t use any toxic ingredients in our formula and we are completely transparent on all our ingredients we specifically choose to use in this amazing product.
we don’t hide behind proprietary formulas like other companies that hide the toxic preservatives and harmful additives used in all other cbd roll on products available in the u.k.
.
in our cbd pain freeze roll on we have specifically added over 25 therapeutic plant ingredients including premium quality cbd to provide fast acting relief where you need it!
fit cbd pain freeze cbd roll on is free from any harmful ingredients, thc free, vegan friendly, organic and a true life saver when it comes to natural pain relief!
.
the feedback from our customers with ailments such as arthritis, fibromyalgia, back pain, muscle soreness, plantar fasciitis and tendonitis has been absolutely amazing!
this product was specifically formulated to target these problems fast without any unwanted side effects and in a completely natural plant based way.
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the scent of pain freeze is soothingly delicious. base notes of sweet citrus, along with subtle hints of menthol, eucalyptus, camphor and exotic spices.
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through thorough testing and feedback from our customers we have found pain freeze applied to the chest area works great at suppressing coughs and providing instant relief from a blocked nose and sinus infection. all while being completely natural, using only plant ingredients.
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click the link in our bio to find out more and to see all the natural plant based ingredients in fit cbd pain freeze.
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www.fitcbd.co.uk
@fitcbdltd
@fitcbdltd
@fitcbdltd

comment 1 star 10 45 minutes ago

I joined this business for hope.
hope for a better future. hope for a chance to live life with that financial burden lifted. hope in dreams of having more time with my kids.

hope is exactly what i got. i started viewing and living life different. i was more hopeful than hopeless. now i get to help others bring hope into their lives.

it’s not going to happen with the snap of fingers, but it can happen over time with hard work!

if you are ready to live life more fully, let’s connect! i would love to chat and see if this business is a fit for you!

i’m opening up 3 more vip mentor positions. text “vip” to 419.545.2537 or drop it in my dm.
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#cheermom #picsofinsta #dailyparenting #lifechange #cheermomlife #workfromanywhere #mommydiaries #momsofinsta #linewife #linemanswife #healthylife #ketolife #ketoliving #ketocoffee #fibroworrior #fibromyalgia #chronicfatigue #financialfreedom #fibrolife

comment 1 star 10 48 minutes ago

Not a posed, pretty picture. swipe for my before and after. wow! including training with a trainer was as game changing as decreasing f*t and upping protein was!

i’m having my ‘mommy makeover’ on tuesday and i’m so excited.

losing over 70lbs, has been life altering. i’m healthy!!! i began this lifestyle to get my life back, not lose weight. i got off 20+ daily meds for several auto immune diseases.

but gravity, significant weight loss and turning 45 had some less than desirable effects, too. despite working out, and wearing xxs/0... things got pretty wobbly.

i deserve to look and feel as good as i can and i can’t wait!

#keto #fitfam #spoonie #chronicpain #ketoafter40 #autoimmunedisease #chronicillness #psoriasis #pcos #ulcerativecolitis #eczema #foodismedicine #ketofoodie #psoriaticarthritis #fibromyalgia #healthyfood #fitmom #ketotransformation #selfcare #tummytuck #weightlosstransformationhelp

comment 1 star 18 48 minutes ago

Dont look at my toes 🙄😂 i know they needs loven. 💅🏼 between work, my family life and flare ups, just isn't priority. 224.4 weigh in to start my first day and week of keto.
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#alexanicole #keto #ketodiet #rheumatoidarthritis #ra #fibromyalgia #hypermobility #chronicpainwarrior #blackgirlfitness #chronicpain #energy #lifestylechange #fitness #healthyfood #health #flex #fitness #fitmom #weightlossjourney #ketoweightloss #ketolife #pdx #pdxketo #ketoaf #homegrown #selflove #pnw #selfcare #healthylilflex

comment 0 star 9 50 minutes ago

Need more people to know this. #pancreaticcancer is very serious, if more knew this maybe it would help them. powerful thc oil 👐

#rsooiluk#braintumor#ptsdawareness #rsooil#rso #cancercureuk#anxietyrelief#cancerfree#cannabiscommunity#thc#cbd#epilepsy#ricksimpsonoil #marijuanacommunity #cbdoil#topshelf#fibromyalgia#fibromyalgiaawareness#phoenixtears#breastcancer#painfree#seizure#fullextractcannabisoil#chemokills#chemo#cannabisheals##chronicpain#cannabisoil#cancertreatment

comment 0 star 7 52 minutes ago

So it’s a bit past the usual!...but am having a day where time means nothing! lol 👍👍👍👍 #giggles tonight’s can of sand is brought to you by...i still have enough space for all of these! photos! 🙌🙌🙌 now me and my judas body need number 10! lols 🥰🥰🥰 and a t. rex cookie jar! yes please! lol 😆👍🤗💜 #fibromyalgia #chronicillness #chronicpain #spoonie #fibromyalgiaawareness #depression #anxiety #asthma #life #strong #spoonielife #butyoudontlooksick #mylife #pain #tired #exhausted #funny #love #reptiles #me #lizard #chronicfatiguesyndrome #insomnia #book #craft #artsy #tattoo #laugh #thrifting

comment 2 star 20 53 minutes ago

Fit witch & thick thighs kind of day!!🧜‍♀️🧞‍♀️🎉🌾🦉 🕉📿🔮💎✌🧙‍♀️🐛🦋🍃🦄🐱 #hippievibes #witchyvibes #fairyvibes✨ #goodvibes #freespirit #arbonneskincare🌿 #veganhealth #veganmakeup #veganrecipes #healthyliving #fibromyalgia #hypothyroidism #workoutmotivation💪 #getridofthepooch #bootygains🍑
#witchesofinstagram🔮🌙 #manifestation #manifest #manifestthatshit #lawofattraction #wellness #wicca #witchery #witches #wiccan #witchyquotes #wildandfree #whitewitch #angelicreiki #reikimaster🙏

comment 0 star 5 59 minutes ago
comment 0 star 8 59 minutes ago

Head has been absolutely killing today, i think it’s down to a week of not really sleeping. been to london yesterday and today for a job which was sound but it’s a long trip there and back. them shooting pains through my temple and jaw and all that, sensitive to noise and light and shit. not great. at one point i thought about hospital but it eased up a bit. knacking again now. bath then see if i can sleep. still waiting for an appointment for a scan to see if there’s anything in there causing it. hopefully not

comment 2 star 11 1 hour ago
comment 0 star 6 1 hour ago

💥wow 💥 - yummy mummy babs is looking slim and toned and heading to her weight loss goal👏👏 6lbs (3kg) in 4 weeks and clothes feeling much better 👗⬇️
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🔹️friends/family said "your too busy to lose weight"🙁
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busy mum of 4 👨‍👩‍👧‍👦 works fulltime💻 and runs around 🚗🎛🧻🧹🧺🛒 despite being diagnosed with fibromyalgia. all the ups and downs we all go through has been doing her best to follow my program. .
how? 🤔
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✔flexible food plan 🍽🍝🍫
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✔3 x a week workouts 🏋️‍♀️ .
✔daily accountability from me📲
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✔no crazy diet and shakes🥤
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✔full guidance/support from me🙋‍♀️
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➡️start now and you too can get amazing results💃 just by making a commitment and small changes 🏋️‍♀️
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your choice. .
your body.
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➡️don't delay and contact me to get your body back💃. 📲
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saadiah arfan .
weight loss coach .
📲07719102148📲

#fiitness #fitnessmotivation #fitnesslife #fitmom #results #fitnessjourney #busywomen #busymom #fitmoms #fatlossdiet #fatlossgoal #fatlosscoach #fatlosscoach #personaltrainer #healthyfood #healthyeating #getfit #fitfam #gym #workout #fitlife #gymlife #healthy #momlife #justdoit #mumblog #transformation #noexcuses #fatlosstips #fatlossgoals #fibromyalgia

comment 0 star 5 1 hour ago

So many things may not have changed this year. you may be in the same place physically; still trying to get towards the same goal that you have been trying to achieve all year, with little or no progress. you may even feel like you have gone backwards: stumbling into even more obstacles along the way.

but one thing is certain: just because the year is ending, does not mean your story is ending too. you are growing and you are continuing along your path whether that day is the last day of the year or the first day of a new one. your story does not stop or halter based upon where you are in the year.

it may feel disheartening because the end of the year is about “reflection”; looking at where you have gone wrong and where you have gone right. the things you have achieved, and the things you haven’t. but you are also welcome to embrace the fact that in terms of your story and where you are headed: there is no stop here. you are free to continue on ahead without looking back, and you are free to acknowledge there is so much more up ahead of you.

so even though it may be the end of another year, i promise you, this is not the end of your story ❤️
~
i’m coming offline for the rest of the year now 👋🏼 i wish you all a calm, peaceful, and happy christmas 🎄 sending everyone love and kindness, but especially to all those who need a little extra these next few weeks. i’ll see you sometime in the new year! ☺️
lots of love, e xx

comment 11 star 80 1 hour ago

Just having a relaxing/lazy day and enjoying...these color things have been really relaxing lately and it helps with surgery coming up...i am very excited and nervous at the same time!! i can't wait!! december 24th abdominal panniculectomy!!
💗💗💗
#lowcarb
#lowcarbliving
#lowcarbforlife
#lovinglowcarb
#goodmorning
#paleo
#keto
#dirtyketo
#psoriaticarthritis
#psoriaticarthritissupport
#psoriasis
#fibromyalgia
#goodmorning
#sundayfun
#lazysunday #nikkislowcarbcooking #nevergiveup
#lovinglife
#coffee

comment 0 star 6 1 hour ago
comment 0 star 2 1 hour ago

I am la tired. it's been hard taking care of hubby while his back is messed up. the doctor didn't call him on friday when he got the x-ray results so it's looking like nothing major happened with his back. on monday we have physio & see his doctor to get the x-ray results. i am hoping that on monday cory's back is at a state where it can finally be worked on. the last two times at physio his back was in too much of a spasm for it to get worked on.🌻my treatment for my nose is a steroid spray that's supposed to help shrink back the swelling that's happened in my nose. omg does it hurt to stick the nozzle up each nostril to spray!! my eyes water so bad from the pain & to add injury to injury, after i get the first nostril done, i have to press it shut to get the other nostril. can't wait for the pain to ease up!
#takingcareofhubby #mypoornose #endometriosis #endowarrior #friendo #iam1in10 #fibromyalgia #fibrowarrior #ibs #jointhypermobility #spoonie #spooniebuddies #chronicpain #chronicallycute

comment 0 star 7 1 hour ago

We call these movements “the three b’s” for a better back. 1) the bird dog 2) bridges 3) bugs aka deadbugs .. we believe it is imperative to maintain a strong core in order to fortify your lower back. these exercises will target the muscles to do just that. give them a whirl and let us know how you feel afterwards by sharing this post to your story .. we might dm you a little holiday surprise :) #mobility #physicaltherapy #chiropractic #selfmyofacialrelease #massage #smr #mobiltywork #ufixthetwist #thetwist #backpain #shoulderpain #kneepain #activerelease #thetwist #health #fitness #wellness #fibromyalgia #iuntwistedtoday #triggerpoint #dailymaintenanceprogram #ufix #gofixyourself

comment 1 star 12 1 hour ago
comment 0 star 1 1 hour ago

Sunday’s are all about family time 🥰lovely afternoon spent at the local pub.. absolutely delicious food and fab company. so grateful for everything my parents have done for me this year and every year before. i wouldn’t be here without them 🙋🏼‍♀️ #sundayfunday #eatingout #buildingstrength #healthandwellness #healthyliving #healthygut #sibo #ibs #lowfodmap #lowfodmapdiet #unconditionallove #glutenfree #dairyfree #roadtorecovery #fibroandme #fibromyalgia #chronicpain #chronicillness #invisibleillness

comment 0 star 14 1 hour ago

Brunch
i made a big batch of 90 second bread and this time i threw in a handful of cheese...once it cooled down i sliced it up and toasted it in the fry pan... so on my plate i have 1 of the 90 second bread...2 eggs cooked over easy...and 2 sausages...
😋😋😋
https://jenniferbanz.com/90-second-microwave-bread#wprm-recipe-container-1919
💛💛💛
#lowcarb
#lowcarblife
#lovinglowcarb
#lowcarbweightloss
#lowcarbstyle
#lovinglife
#loveyourself
#lowcarbliving
#lowcarbforlife
#keto
#dirtyketo
#paleo
#psoriaticarthritis
#psoriaticarthritissupport
#psoriaticarthritisawarness
#psoriasis
#fibromyalgia
#brunch
#nikkislowcarbcooking
#nevergiveup

comment 0 star 6 1 hour ago

"𝐓𝐡𝐞 𝐪𝐮𝐢𝐞𝐭𝐞𝐫 𝐲𝐨𝐮 𝐛𝐞𝐜𝐨𝐦𝐞, 𝐭𝐡𝐞 𝐦𝐨𝐫𝐞 𝐲𝐨𝐮 𝐜𝐚𝐧 𝐡𝐞𝐚𝐫" -𝐑𝐚𝐦 𝐃𝐚𝐬𝐬

it's scary to branch out of what you are used to but the butterfly cannot emerge if the caterpillar doesn't leave the cacoon 🐛🦋 .
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i've officially started looking for studios to teach at in my area! 🧘‍♀️ .
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i have also officially written my first blog post and published my website 💜 .
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the wheels are turning and i am so excited to begin this new journey with all of you! to share the practice that has helped anchor as well as heal my mental and physical body🙏

all and any support by is appreciated, you can follow me via facebook or my website linked in my bio 🥰

blog post- rebirth of the scientist:
https://rachaelmessieryoga.wordpress.com/2019/12/14/rebirth-of-the-scientist/
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website:
https://rachaelmessieryoga.wordpress.com/

comment 4 star 17 1 hour ago

:
••••••••••
🧘‍♀️📱
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j'apprends constemment. ma formation de graphiste me pousse à questionner les médias que j'utilise. @instagram est mon préféré.
••••••••••





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#fibromyalgia #book #yoga #chronicpain #bookstagram #yogaeverydamnday #books #spoonielife #chronicfatigue #yogi #bookworm #chronicillness #reading #invisibleillness #read #yogalove #booklover #spoonie #instabook #yogainspiration #namaste #lymedisease #yogaeverywhere #insta #fibro #bibliophile #ehlersdanlossyndrome #lupus #yogagirl #yogachallenge ••••••••••

comment 0 star 8 1 hour ago

Weekend vibes
💯✨💨
any plans for this friday the 13th?
location: lowell cafe
paper: shine papers 24k
strain: humboldtbrothers gelato great for my appetite and fibro pain.
shot by : blondelemonade 🍋 .
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#lowellcafe #shinepapers #gelato #humboldt
#womenincannabis #cannabisphotography #thc #cbd #mmjpatient #medicated #weshouldsmoke #fibromyalgia #california #dtla #420 #letsgethigh #stonernation #smokeweedeveryday #hightimes #cannabis #cannabiscommunity #chronicillness #chronicpain #weekendvibes

comment 0 star 30 Yesterday