Instagram Public Photos with #chiari

The claudia i. martinez strength scholarship endowment has officially been created at @mcgovernmed @myuthealth!

omar, my classmate, first approached our school 3 years ago and has since worked with administrators to create this in my honor. it is so humbling to know my story will forever be a part of my school’s history because of omar’s kind act.

thank you to all the generous donors who helped make this possible. i can’t wait to see the different recipients of this scholarship as the years go by.

although sometimes difficult to appreciate, there is beauty in the darkness we face. together we are making a difference in this world 💖



#docswithdisabilities #latinasinmedicine

comment 66 star 4,277 2 days ago

Update: we are now 1 week post op and the little warrior princess is doing good, all things considered. her mom and i were able to be with her when she was given anesthesia in the or and were the first 2 faces she saw when she woke up. (i may have refused to leave this spot until she finally did... almost an hour later. - i would’ve like to see someone try to make me 🤨🔪).
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after 2 days in the pediatric icu, we were moved to our own room, where we spent the next 4 exhausting days switching off sitting right by her side in case she needed anything (and, i do mean anything! - after brain surgery, she could’ve asked for a stinkin pony and i would’ve bought her one!) she was finally able to sit upright for about 20 seconds by the 4th day and stood on the 5th. after we got a few steps in on day 6, we were ready to leave... even though the pain and nausea were beyond intense for her. getting back to our place in the snow was a feat in itself, but somehow, we did it! now, we’re home resting. not our home, but our home for the next couple/few weeks in cold nyc! ❄️ this recovery will take a very long time, but i know we’ll get through it together. she’s got a pretty good little team on her side.
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i have never been more terrified of anything in my life, prior to this surgery. i want to express my gratitude and say thank you to all of you that have reached out and shown love and concern for my baby girl. 🙏🏼 it truly means a lot to us all. watching the love of your life have any kind of surgery sucks, but knowing there’s so much love, positive vibes & thoughts, and prayers going out on our behalf really makes the heaviness feel a bit lighter. so much ❤️ to you all for that!
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#soinlove #warriorprincess #daddysgirl #strongestkidiknow #chiarimalformation #chiari #decompressionsurgery #potssyndrome #pots #ehlersdanlossyndrome #eds #nypresbyterianhospital #pediatricneurosurgery #newyorkcity #nyc

comment 153 star 888 December 2019

Tell me,
do you know how it feels like
to feel broken down
and beaten inside?
to see only the hate,
you try and find a way to hide
but it’s helpless
cause there’s no way out

to despise the way
you see yourself.
you feel so lost
the emptiness from within
then, like a flip of a switch
you know it’s time to end the sufferin

i remember when the day had come.
was to end the life
i thought shoulda never begun.
i vowed to myself,
to see it through.
i vowed to myself,
it was what i had to do.

what happened next,
is hard for me to tell
for what i had denied so long
was behind the veil.
but by a saving grace
my life was spared

it took some time
but soon i learned
there was never a day
i truly went unheard

comment 166 star 1,061 last month

New upload! link in bio! 🤩 kyra meets billie eilish! (finn is posting his version on monday 😊) @maggiembaird @billieeilish

comment 127 star 4,394 September 2019
comment 4 star 155 3 days ago

She didn’t want to come out of her room. her head was half shaven, fresh staples from her brain surgery, the rest of her hair in a tangled knot.
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it was time for her physical therapy session, but she didn’t want to go. “i promise when we come back i’ll bring you coffee”, i told her. finally, she agreed to transfer to the wheelchair.
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when we got to the physical therapy gym she didn’t want to stand up. she kept refusing to do the exercises. we had the walker right in front of her, many of us were ready to help her stand, but she refused to comply. “people can see my head, they don’t have this”, she said.
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to my surprise, the therapist then pointed at me and told her, “you know, she was a patient here, i helped her relearn how to walk right here, she was in a wheelchair, her head was shaved like yours, and she had a big incision on her head. she did it and you can too. you can do it, i believe in you”.
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she looked at me with a big smile, “really?”.
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“yes”, i said and turned to show her my scar.
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without even warning us she started to try to stand up with the walker that was in front of her wheelchair. we quickly took our positions and then she took her first steps.
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it was incredible to see the difference in her motivation after he shared my story with her. she went from not wanting to do anything, to wanting to do more than she was asked.
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when she was back in her room, i took her her coffee. i told her how brave she was and how incredibly proud i was of her. and as i was walking out the door she told me, “but i can’t believe you did it. i’m going to do it too”.
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my month at tirr has come to an end, until i go back in july, but my heart is so incredibly full. i’m exactly where i’m meant to be. pm&r i wish i would have found you sooner.

comment 203 star 7,708 June 2019

Huge relief that my bro @brodie_baker brain surgery went well yesterday. those 3 hours were bloody stressful! i’ll sneak you in a few cold beers today 😉

comment 11 star 174 December 2019

I am exhausted.
im very swollen &
i’m wearing a heart monitor.
everyday this past week i had a doctors appointment. this week is going to go just about the same except it’s rehabilitation week. that means physical therapy, speech therapy and occupational therapy .
i’m so not ready for it.
neither is my body.
my body is pretty unhappy with me. in one day i went from size 5 to size 10. i am theeee most uncomfortable i’ve ever been. my whole entire body is swollen. the amount of water that my body is retaining is insane. i literally feel like a walking balloon. every step is uncomfortable and every joint in my body aches.
hopefully i have some answers soon.
it’s been a fun week guys.
if you have any advice for water retention or swelling i would love to hear it! •••••••••••••••••••••••••••••••••••••••••••••••••



#moonface #onsteroids #waterweight #waterretention #pots #dysautonomia #ehlersdanlossyndrome #spoonie #spooniewarrior #zipperhead #zebrastrong #chiariwarrior #chiaristrong #chiarimalformation #chiari #butyoudontlooksick #brainsurgery #brainsurgerysurvivor #heartmonitor #chronicallyill #chroniclife #potssyndrome #bendlife #tattooedgirls #tattooedwomen #chroniclife #mmjcommunity #mmjpatient #indicadominant #cbd #cbdhealth

comment 22 star 144 2 weeks ago

The assumption is made quite often that if a chronically ill person wears makeup, they must be feeling less ill on that day 🎀
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there is a certain amount of time that goes into putting it on (dependent on complexity), which may mean we don't put it on when we are feeling really rotten, but this doesn't mean that us wearing it automatically means we're having a less painful/symptomatic day
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for example, i may put on makeup around lunch time for when i go out a few hours later and then get worn out by what i was doing that afternoon
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i may put on makeup to make myself feel more confident to face the stares i get in my wheelchair or the fact my whole body feels like it's been run over by a bus and then infected with zombie germs
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after all, many use makeup to instill a sense of self-esteem when otherwise it'd be hard to face the world
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do you use makeup? how does it help you and do you find people make this assumption about you as well? 💄
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id: a cartoon illustration of an eyeshadow palette on a wooden table. the palette contains a range of colours which make up a rainbow. on the palette's mirror there is a sentence that says "wearing makeup doesn't mean that i'm feeling less ill today". beside the eyeshadow is some mascara and lipstick. above it are some rainbow fairy lights
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#chronicillness #chronicallyill #spooniecommunity #spooniewarrior #dysautonomia #potssyndrome #potsies #ehlersdanlossyndrome #ehlersdanlosawareness #migrainelife #migraineawareness #cfsme #chronicfatiguesyndrome #fibrowarrior #fibromyalgia #endometriosis #inflammatoryboweldisease #ulcerativecolitis #crohnsandcolitis #crohnsdisease #gastroparesis #mcas #crps #chiari #chiarimalformation #pcoslife #pcossupport #spoonie #chronicpainsucks #colourblind_zebra

comment 69 star 1,286 last month

Posts will be few and far between, or completely non-existent, for the next 8 days. we’re packing up tonight, heading for orlando in the morning, and saturday morning we’ll be on board our ship, sailing in the caribbean.
wish us luck and, if you’re a praying person, please pray for safety, health, and manageable pain levels.
see y’all later.

#caribbeancruise #nclbreakaway #chronicpain #chronicillness #eds #ehlersdanlossyndrome #ehlersdanlos #heds #cci #craniocervicalinstability #idiopathicintracranialhypertension #iih #pseudotumorcerebri #pseudotumor #chronicpainawareness #chronicallyawesome #spoonie #chiari #chiarimalformation #chiariawareness #spoonfulofstripes #zebrastripesandeverydaylife #professionalpatient #vpshunt #brainsurgery #brainsurgerysurvivor #ehlersdanlosawareness #zebrastrong #donoharmbuttakenoshit #medicalanomaly

comment 0 star 12 54 minutes ago

Hey it’s me, suzy! description: i have long, dark hair & brown eyes. i’m wearing striped long sleeve blouse and black tank top & blue jeans. i’m sharing deaf history about how laurent clerc was a respected deaf teacher of the deaf from france. thomas h gallaudet brought clerc over from france in 1816. together they founded the 1st american school for the deaf in 1817.

#signlanguage #deaf #hoh #deaftalent #deafpride #hearingaids #accessibility #deafgain #access #disability #chronicillness #rsd #crps #truebiz #chronicpain #chiari #signing #asl #americansignlanguage
#deafcan #tiktok #deafculture #videocreator #deafawareness #tiktokcreator at asl_suzyq & #youtuber at aslsuzyq

comment 0 star 9 1 hour ago

Hoping this doctor lets me have the surgery as soon as possible. i want some relief from this dizziness and these headaches and fatigue and my limbs going numb already... #chiarimalformation #chiari #chiarimalformationawareness #chiariawareness

comment 0 star 5 3 hours ago

So, i had to #scat today because how else can it be #jazz if there is no scatting?! i did terribly (as usual) and had a great time. now, back to work for the pharaoh.
#singer #songstress #music #chiari #pnes #braininjury #seizures #memoryloss #tired #spoonie #myspoonsgone #blessed #lasvegas

comment 0 star 6 3 hours ago

A siringomielia é uma doença rara, com evolução lenta e progressiva caracterizada pela formação de cavidades tubulares na medula espinhal, preenchidas por líquido (liquor) e sinais de deterioração na medula.
@convivendocomdoencasraras
@projetoautoimunego
sindrome de chiari
siringomielia
#siringomieliaysindromearnoldchiari
#siringomielia #neurologia #neurosurgery #chiari #chiarimalformation 
#chiarimalformationawareness#chiariwarrior 
#chiariawareness #chiaristrong 
#findacureforchiari 
#findacure

comment 0 star 8 4 hours ago
comment 1 star 37 5 hours ago

Hey it’s me, suzy! description: i have long, dark hair & brown eyes. i’m doing a duet with hearing girl who has some of the signs & concepts incorrect. i wanted to help her bcz she asked me. i’m wearing black shirt with #whyisign on it. a young girl is at my right & she’s trying to sign.
#signlanguage #deaf #hoh #deaftalent #deafpride #hearingaids #accessibility #deafgain #access #disability #chronicillness #rsd #crps #truebiz #chronicpain #chiari #signing #asl #americansignlanguage
#deafcan #tiktok #deafculture #videocreator #youtube #deafawareness #tiktokcreator at asl_suzyq & #youtuber at aslsuzyq
***some cc is on the video and then the song
cc: “welcome to wonderland, we’ve got it all...potions and pastry’s tips make you grow tall. forrests ...”

comment 0 star 32 7 hours ago
comment 2 star 20 7 hours ago

Sconti royal canin
sabato 29 febbraio
negozio di chiari
#areaverdeofficialteam #royalcanin #cani #gatti #chiari #cuccioli #gattino #

comment 2 star 7 8 hours ago

Baccalà alla bresciana 🐟
“ma cos’è questo profumo?”
è tutto il giorno che ogni volta che entrate la domanda parte spontanea. il #baccalà, col suo aroma, ha il potere di evocare ricordi: ricordi di una cucina di casa, di famiglia.
_____________
per tutta la quaresima, il venerdì, baccalà alla bresciana di @luigi_cucchi!
_________________________________
#cucchi1984 #ilgustodellatradizione #pesce #quaresima #stoccafisso #dimagro #castrezzato #rovato #chiari #brescia #visitbrescia #bresciaatavola #franciacorta #piattiitaliani #piattidellatrafizione #prodottitipici #artigianidelgusto #salumeria #gastronomia #macelleria #tradizioneitaliana #cucina #cucinaitaliana #cucinatradizionale #solocosebuone #italiaintavola

comment 0 star 34 8 hours ago
comment 5 star 27 9 hours ago

Quando domani è il tuo compleanno ma marilyn vuole starti davanti a tutti i costi.
link in bio per il regalo a ozzy!
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#funnyvegan #vegan #animallovers #veganlife #sanctuary #friendsnotfood #donkey #farmsanctuary #farmsanctuarylife #veganitalia #brescia #chiari #porcikomodi #porcikomodichiari #plantbased #plantbaseddiet #santuario #animaliliberi

comment 0 star 50 10 hours ago

Tranquilli, siamo aperti e lo restiamo!
potete trovarci nei soliti orari :)
[per info e richieste, siamo raggiungibili anche fuori orario tramite whatsapp 030.5243990 e facebook messanger]

ps: sappiamo che sono giorni strani questi, poca gente in giro e scuole chiuse, ma grazie a tutti per essere passati!

#nonsimolla #aperto #mercatinousato #brescia #chiari #unduetrestella #usato

comment 0 star 6 11 hours ago

It’s hard to think that two years ago today, i was having surgery on something people or myself barely knew about. this day usually gets me in my feelings when i think about it but today i’m okay. that’s because of my strong support system then, now, and forever. i knew after everything we went through that she was the one. so 5 and half months ago, i made it official. i love you, @cmgrubner. though i don’t wish my head issue on anyone, i’m sort of glad it happened. it gave me a new outlook on life, made me focus more on my self worth, and gave me more drive to do what i do best and that’s help and guide other people to help make sure that they reach their potential and live a better life. .
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#chiarimalformation #chiari #scar #wedding #love #forever

comment 0 star 58 12 hours ago

Rinnova i tuoi #elettrodomestici con gli #sconti #orangebest e avrai più efficienza, meno consumi e bollette più basse 🤗 corri da #expert e approfittane subito
scopri di più 💻 expert city sbaraini
☎ 030711652
📌 via villatico,1 chiari

#chiari #elettrodomestici #tecnologia #offerte #prodottitop #assistenza #casa #pc #laptop #convertibili #notebook #telefonini #apple #tv #samsung #lg #qled #4k #rasoi #lavastoviglie #lavatrici #asciugatrici #installatore #condizionatore

comment 0 star 3 13 hours ago

Wednesday was a big day for me. i had two procedures done on my bladder. we did not get the results we wanted or expected, but dr. n is working so hard to help me!! as usual, @gachildrens was wonderful! i had the most amazing nurses who held my hand during my least favorite part, the anesthesia mask. them and child life also kept me distracted during the second procedure where i had to be awake! i love chog and everything they do to help me!! we have a long journey ahead of us and almost definitely two more surgeries in the next few months. my body and soul are weary as i trudge into another battle, but i could not be blessed with a better army beside me. thank you for all your prayers, encouraging words, and everything y’all do to be there for me no matter what it is! it’s difficult knowing these next few months hold surgeries, testing, and more unknowns, but i know god is my strength. i must remember that.
#gtube #tubie #tubielife #chiari #wheelchairbound #abled #not #disabled #miraclekid #warrior #praying4annat #godisgood #godisgoodallthetime

comment 20 star 149 13 hours ago

"l'arte in qualsiasi forma é terapeutica, é innegabile" 🥀💀🖤
grazie a @espoarte e grazie a @colossi_arte per l'iniziativa
#espoarte #colossiarte #ospedalemellini

comment 1 star 16 13 hours ago

On tuesday i had the amazing opportunity to support @gachildrens during national pancake day @ihop !!! thank you to everyone who donated to chog!!! i love how on days like tuesday, our whole community rallies together to support the warriors who are staying in the hospital. your donations go towards therapy dogs, vein finders, pediatric beds, and more. all of which have made my experience, and many other children’s experiences at chog, so much more enjoyable. your donations equip the hospital with resources to allow children to have happy memories of their hospital stay!!
thank you @wrdw_wagt and @wjbf6 for all your support towards chog, and for giving me the opportunity to share how important chog is too me! you guys are always such a joy to see!!
#nationalpancakeday #ihop #childrensmiraclenetwork #abcnews #foxnews #tubie #gtube #tubielife #chiari #wheelchairbound #abled #not #disabled #miraclekid #chronic #pots #praying4annat

comment 0 star 120 14 hours ago

📣 porte aperte sabato 29 febbraio e domenica 1 marzo presso la sede di 📍 chiari (bs). 😉 passa a trovarci e scegli tra le numerose offerte mirafiori outlet🔝: vetture nuove, usate, km0 o aziendali 🚘

scopri anche i modelli alfa 2020 😍

#baccanelli #concessionaria #mirafiori #outlet #mirafiorioutlet #porteaperte #vettura #auto #autovettura #km0 #nuova #usata #aziendale #chiari #brescia #bs

comment 0 star 15 14 hours ago

Arte in corsia - si parla della permanente all'ospedale mellini curata da colossi arte

#colossi #colossiarte #arte #artecontemporanea #brescia #iseo #contemporaryart #milano #pesci #design #artcollector #artgallery #arredatore #ospedalemellini #chiari

comment 1 star 17 14 hours ago

Ridi ridi xche' fa ben all'anima 🤩😜...
#gioieinfinite#positiv#giornatadisole☀️😎 #sorrideresempre #occhi #chiari#istapicture #blackandwhite #ja#women #me #ciaobelli#primopiano#sguardi#selfie #

comment 2 star 19 14 hours ago

Esta enfermedad mía es tan rara. ayer no me tenía en pie, no salí ni a caminar un poco y hoy un poco más 8 km y el mejor ritmo. tendrá que ser así. ahora a aguantar el dolor de cabeza que mientras hago la caminata no me duele..............!!! #deporte #chiariygimnasiosoncompatibles #chiarimalformation #chiariysiringomielia #chiari #chiariquesecuida #deporteysalud

comment 0 star 22 14 hours ago

Refill💅🏻 prima & dopo 🌸🤍 ieri e oggi solo colori #chiari ! 😂 questa volta #stephanie💅🏻💞

comment 0 star 20 14 hours ago

Being pushed around london by this loon ... we came here for medical reasons but managed a little sight seeing too.
this city is not designed for people with mobility difficulties! the underground was shocking considering the amount of people with disabilities and the money they get from the public each year. two third’s of london underground isn’t accessible.

one kind man did open up a closed escalator to help us avoid 4 flights of steps though.
it feels as though everyone is in a hurry, rushing you along or pushing past to get onto tubes and they don’t stop long enough to allow someone struggling to get on/off.
i’m quite shocked noones protested to make the underground accessible and i worry for people with disabilities who live here or need to access london city. i’d love to know if or how they manage..! this clip is after we stopped for a quick refreshment and it turned out to be happy hour 2 for 1 on cocktails 🍸😆 #cheers
its been really painful and tiring getting around, even with my walker.
the time i’ve spent upright this week is more than i’ve managed in months- so it shows i can push limits if i must- but my body is rebelling like crazy with blistered mouth, ulcers, nerve pain, tremors, infections & of course increased pain which makes me feel nauseous.
you see both sides of my world because i let you in.... noone’s life is perfect no matter their social media posts.
this is our life and we have plenty to laugh about and to be thankful for.
this vid makes me laugh, so i thought i’d share for your smiles 😄 ❤️ samantha
#kidsthatcare #eds

comment 5 star 39 14 hours ago

Felpa abito €29
maglia €18
gonna pois €21
sneaker €35
#outfitoftheday #outfit #hangard #style #shop #shopping #chiari#moda #fashionstyle #fashionshop

comment 0 star 31 15 hours ago

Abito pois €35
maglia €18
jeans €39
sneaker €35
#outfitoftheday #outfit #hangard #style #chiari #shopping#shop #styleoftheday #pois #denimlovers

comment 0 star 37 15 hours ago

𝗗𝗔𝗥𝗜𝗢'𝗦 𝗦𝗧𝗬𝗟𝗘 𝗺𝗼𝗻𝘁𝗮𝘁𝘂𝗿𝗲 𝗲𝘀𝗰𝗹𝘂𝘀𝗶𝘃𝗲!
𝗥𝗲𝗮𝗹𝗶𝘇𝘇𝗮𝘁𝗲 𝗮 𝗺𝗮𝗻𝗼 𝗶𝗻 𝗖𝗮𝗱𝗼𝗿𝗲 🇮🇹
. . .
#otticabegni #otticabegnichiari #ottica #torchio #eyewear #glasses #dariostyle #dario #chiari #brescia #realizzateamano #cadore #madeinitaly #italia #mido #lavorazioneartigianale #lavorazione

comment 1 star 33 15 hours ago

Nutritive
trattamento nutriente pensato per rendere i capelli leggeri e irresistibilmente morbidi al tatto, la gamma kérastase nutritive interviene sui capelli secchi in profondità grazie a una routine personalizzata su tre livelli di secchezza
#kerastase #nutritive #bain #lait #nectar #irisome #paris #hair #shampooing #fluide #glacage #brushinghair #blowdry #polishing #secs #cheveux #nutrition #durable #bain #250ml #laitvital #200ml #nutritive #150ml #k #❤️ #nicoleacconciature #chiari

comment 0 star 5 16 hours ago

Nutritive
trattamento nutriente pensato per rendere i capelli leggeri e irresistibilmente morbidi al tatto, la gamma kérastase nutritive interviene sui capelli secchi in profondità grazie a una routine personalizzata su tre livelli di secchezza
#kerastase #nutritive #bain #lait #nectar #irisome #paris #hair #shampooing #fluide #glacage #brushinghair #blowdry #polishing #secs #cheveux #nutrition #durable #bain #250ml #laitvital #200ml #nutritive #150ml #k #❤️ #nicoleacconciature #chiari

comment 0 star 3 16 hours ago

Nutritive
trattamento nutriente pensato per rendere i capelli leggeri e irresistibilmente morbidi al tatto, la gamma kérastase nutritive interviene sui capelli secchi in profondità grazie a una routine personalizzata su tre livelli di secchezza
#kerastase #nutritive #bain #lait #nectar #irisome #paris #hair #shampooing #fluide #glacage #brushinghair #blowdry #polishing #secs #cheveux #nutrition #durable #bain #250ml #laitvital #200ml #nutritive #150ml #k #❤️ #nicoleacconciature #chiari

comment 0 star 4 16 hours ago

Nutritive
trattamento nutriente pensato per rendere i capelli leggeri e irresistibilmente morbidi al tatto, la gamma kérastase nutritive interviene sui capelli secchi in profondità grazie a una routine personalizzata su tre livelli di secchezza
#kerastase #nutritive #bain #lait #nectar #irisome #paris #hair #shampooing #fluide #glacage #brushinghair #blowdry #polishing #secs #cheveux #nutrition #durable #bain #250ml #laitvital #200ml #nutritive #150ml #k #❤️ #nicoleacconciature #chiari

comment 0 star 2 16 hours ago

Nutritive
trattamento nutriente pensato per rendere i capelli leggeri e irresistibilmente morbidi al tatto, la gamma kérastase nutritive interviene sui capelli secchi in profondità grazie a una routine personalizzata su tre livelli di secchezza
#kerastase #nutritive #bain #lait #nectar #irisome #paris #hair #shampooing #fluide #glacage #brushinghair #blowdry #polishing #secs #cheveux #nutrition #durable #bain #250ml #laitvital #200ml #nutritive #150ml #k #❤️ #nicoleacconciature #chiari

comment 0 star 5 16 hours ago

Nutritive
trattamento nutriente pensato per rendere i capelli leggeri e irresistibilmente morbidi al tatto, la gamma kérastase nutritive interviene sui capelli secchi in profondità grazie a una routine personalizzata su tre livelli di secchezza
#kerastase #nutritive #bain #lait #nectar #irisome #paris #hair #shampooing #fluide #glacage #brushinghair #blowdry #polishing #secs #cheveux #nutrition #durable #bain #250ml #laitvital #200ml #nutritive #150ml #k #❤️ #nicoleacconciature #chiari

comment 0 star 5 16 hours ago

Nutritive
trattamento nutriente pensato per rendere i capelli leggeri e irresistibilmente morbidi al tatto, la gamma kérastase nutritive interviene sui capelli secchi in profondità grazie a una routine personalizzata su tre livelli di secchezza
#kerastase #nutritive #bain #lait #nectar #irisome #paris #hair #shampooing #fluide #glacage #brushinghair #blowdry #polishing #secs #cheveux #nutrition #durable #bain #250ml #laitvital #200ml #nutritive #150ml #k #❤️ #nicoleacconciature #chiari

comment 0 star 2 16 hours ago

Y las chicas de capriolo se fajaron con la primera secuencia de esta coreo que me encanta! ❤️ trabajando la memoria, la velocidad y la coordinación 💪🏼 excelente trabajo, muchachas! 🔥
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🇮🇹 e le mie ragazze di capriolo sono impegnate molto con la prima sequenza di questa coreo che mi piace tanto! ❤️ lavorando la memoria, la velocità e la coordinazione 💪🏼 ottimo lavoro ragazze 🔥
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#yosoyfitcombat #fitcombat #somosfuertes #somosfitcombat
#fitcombat #fitcombatvenezuela
#fitness
#fitnessmartialarts #fma #fitnessdecombate #familiafitcombat
#fitcombatinternacional #fitcombatitalia #rovato #brescia #chiari #erbusco #lombardia #fitness #fitnessitalia #iosonofitcombat

comment 2 star 68 16 hours ago

Read that again if you need to. anyone going through hard times, you’re not alone. this week my dog ran out the door when it was open for just a min. & was lost until a neighbor brought him home. i’m having heart / clot issues & will be back in the er i’m afraid. but i know regardless i’m going to be ok no matter what. life is short. laugh, love, do your best & don’t feel guilty if your 100% is 40% one day or everyday. or if taking a shower is your luxury. it’s not a choice. i want to inspire people & make true connections. i didn’t make it this far to make it this far. i have many dreams, talents & gifts i still need to use. my autobio unfinished, art undone, jewelry unmade, memories waiting..everyone that’s in my life is in it for a divine reason. i love you all .. thank you for loving me unconditionally💜jo #chronicillness #rare #incurable #ehlersdanlossyndrome #bloodclots #autoimmunewarrior #lupus #raynauds #sjogrens #pots #mvp #tricuspidvalve #cfs #chiari #cerebralspinalfluidleak #gastroparesis #painsomnia #acceptadaptadjust #spoonie #blessed #attitudeofgratitude #love #lifeisshort #monathair #crystalhealing #empath #thankful #warrior #mindset #bekind

comment 6 star 23 17 hours ago

Buongiorno ✨
tuta €35
sneaker €35
#outfitoftheday #style #womancollection #hangard #chiari #shopping #shop

comment 1 star 51 17 hours ago

Non preoccupatevi @altatami_chiari torna presto! restate aggiornati per scoprire le date di apertura dei nostri #ristoranti a #chiari e a #cavernago

comment 0 star 53 18 hours ago

The lenten season is here! today is ash wednesday, but i don't wear ashes. i get annointed as the bible says not to wear ashes on a fast...and lent is a fast. to celebrate today, all natural #sorbet (no added sugar), #grapes 🍇, and #water 🥰 #love yourself!
#chiari #pnes #braininjury #seizures #memoryloss #tired #spoonie #myspoonsgone #blessed #lasvegas

comment 0 star 7 19 hours ago

My version of hell, which is ironic given my five brain surgeries. this is a routine thing for me. i’m extremely claustrophobic to begin with, but it doesn’t help that they put a plastic cage over my head and lock it to keep me in place. also, the one time i didn’t have my husband with me and i was alone, the tech gave me the rubber ball to squeeze if i needed to be taken out and he didn’t come in to get me for probably 3-4 minutes and it was pretty much my worst nightmare lived. it might sound ridiculous but truly i would rather do anything else in the world. my doctor prescribed me meds...crossing my fingers they work and that i’ll be un-phased tomorrow morning during my 60 minute scan. even with my husband standing at my feet, talking me through i’m normally a blubbering, panicked mess. trying to remind myself, i’ve done it one hundred times, what’s one more? this world of chronic illness, surgeries, testing, meds, doctors visits...it’s not for the faint of heart. this mri will probably decide whether or not my next and biggest surgery will be soon or if we can postpone. maybe that’s part of it too. reminding myself that i’m just at the beginning of all this. so much unknown ahead and it’s scary. trying to remind myself i am capable and strong 🥺💓 #chiari #chiarimalformation #chiariwarrior #chiarimalformationawareness #chiaristrong #chiariawareness #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #chronicpainawareness #mri #hospital #tests #brain #brainsurgery #recovery #ptsd #anxiety #depression #medicine #neurology #neurosurgery

comment 16 star 23 20 hours ago

Grab your limited edition #chiarimalformation shirt today! available in kids and adult sizes! kids $15 adults $20. dm for purchasing info. #chiari #ehlersdanlossyndrome #chiariwarrior #chiarimalformationawareness #chiaristrong #arnoldchiarimalformation

comment 0 star 2 23 hours ago

Renewable energy is a thing these days. i found one alternative, inexhaustible fuel. behold, i bring you the gift of this fuel in hopes you can also use it to your benefit when you're wearing your fatigue. bonus: even if the only piece of your brain that's online is your lizard brain, this will still work. in fact, your ever-present lizard brain is what makes it work.
#chronicfatigue #chronicillness #fatigue #exhaustion #chiarimalformation #chiarisucks #chiari #chiarilifter #chiarilife #powerlifting #rawpowerlifting #womenpowerlifting #powerliftingwomen #gwpl #girlswhopowerlift #energy #lizardbrain #alternativefuel #dominionbarbell

comment 2 star 7 Yesterday

Congratulations to matthew d. smyth, md, for receiving the @washumedicine 2020 distinguished clinician award!
#neurosurgery #epilepsy #braintumors #washu #chiari #pediatricneurosurgery @stlchildrens #spinabifida #minimallyinvasive #laserablation #roboticsurgery

comment 1 star 22 Yesterday

My shirt would constantly be purple! would yours be a light purple or dark purple? right now mine would be dark because the pain is bad. sending everyone love today! 💜 -meena⠀⠀⠀⠀⠀⠀⠀⠀⠀
⠀⠀⠀⠀⠀⠀⠀⠀⠀ 🌟 win unique chronic illness clothes from the unchargeables shop. link to giveaway in bio.🌟⠀⠀⠀⠀⠀⠀⠀⠀⠀
⠀⠀⠀⠀⠀⠀⠀⠀⠀ #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #migraine #fibromyalgiaawareness #spoonieproblems #spooniewarrior ⠀⠀⠀⠀⠀⠀⠀⠀⠀
#chroniclife #autoimmunedisease #chronicillnessawareness #anxietywarrior #sicklife #disabledandcute #invisibleillnessawareness #disabled #zebrastrong #spooniesunite #raiseawareness #butyoudontlooksick #disabilityawareness #invisibedisability #spoonie %invisibleillness #fibro #arthritis #chiari #pcos #endometriosis #disability

comment 0 star 88 Yesterday

Facebook gave me the not so friendly reminder that on this day, five years ago, i was discharged from the hospital after spending 2 weeks and 2 days being sent between the neurosurgical intensive care unit, the operating room and the regular neurosurgical unit. those two weeks were defo some of the worst in my entire life. i first got admitted with sky high infection rate numbers that turned out to be caused by about a liter of brain fluids that had gotten into my abdomen since my shunt didn’t work properly. the following weeks were filled with tons of different tests, both on my blood and the brain fluids. at the end of those 2 weeks it was decided that they had to remove the non working shunt and hook me up to an intracranial pressure monitoring device for a couple of days. i was basically awake with a tube stuck inside of the ventricles of the brain (yes it’s totally as traumatic and awful as it sounds).
this unedited picture was taken when i finally got discharged and could breathe the fresh air for the first time in two weeks, sporting the surgery wound dressing with half of my hair shaved of🤕🥺 #tryckmätning #intracranialpressuremonitoring #traumaticmemory #brainsurgery #brainsurgerysurvivor #mriscan ##instalife #wheelchairgirl #anxietywarrior #angest #anxiety #disabled #ventriculostomy #brainsurgery #brainsurgerysurvivor #neurokirurgi #spinabifida #spinabifidawarrior #hydrowarrior #hydrocephalus #chiari #chiariwarrior #scoliosis #scoliosissurgery #adhdlife #adhd #sweden #chronicpain #swedishgirl #fangirl #directioner

comment 12 star 67 Yesterday

This video shows you asl basics vocabulary for a few accessories....
the rest of the asl lessons & asl song covers are at my youtube channel at aslsuzyq (link is in my bio)... hey it’s me, suzy! description: i have long, dark hair & brown eyes. i’m wearing black floral sweater and white top.. #signlanguage #deaf #hoh #deaftalent #deafpride #hearingaids #accessibility #deafgain #access #disability #chronicillness #rsd #crps #truebiz #chronicpain #chiari #signing #asl #americansignlanguage
#deafcan #tiktok #deafculture #videocreator #youtube #deafawareness #tiktokcreator at asl_suzyq & #youtuber at aslsuzyq

comment 1 star 34 Yesterday

My first time at the new infusion clinic was great! i had to switch due to the over-scheduling / understaffing of my other clinic. this one is so much more sensory friendly (not as loud or bright), and i feel comfortable with my new nurse. hopefully this change will reduce the stress and migraine triggers i was getting at my previous clinic! fingers crossed.

comment 3 star 76 Yesterday

It’s getting nice out #spokane 😱 50 degrees?! yes please! i had a raging migraine, so please forgive the #crankypants #facialexpression this wonderful #wednesday 💕🙏 #migraine #ragingmigraine #chiari #recoveringfromtheflu #happywednesday #blessings

comment 0 star 14 Yesterday

Well, chiari malformation surgery went well. soo much pain that first night but it's subsiding. hopefully leaving there icu tonight and into a regular room. dr. petra klinge really is the best! #chiari #chiarimalformation #decompression

comment 6 star 20 Yesterday

Donation made! thank you so much to everyone who participated in my last pre-order. i know the sum is small, but we’re only getting started! living with chiari is an experience i could never fully explain to someone who doesn’t already know what it’s like to have an illness. there is no cure. there is no permanent medical procedures to make it better. all we can do is support those doing the work and hopefully those that come after us will have better options. my hope is with them. and my gratitude is with you. thank you, and i hope you will help me do this again.
#bathbombs #soap #lotion #lipbalm #loofahsoap #exfoliatingsoap #handmade #handpoured #pagan #paganowned #disability #disabilityowned #brainsurgerysurvivor #chiari #chiarimalformation #zipperhead #patreon
patreon.com/thepurplecauldron

comment 0 star 12 Yesterday

Update on azriyel....
after her last mri in october, the drs found she has chiari malformation type 1.... which would explain a lot of her symptoms. it is something she has to live with. there is no cure... sometimes surgery can help alleviate symptoms but she’s not a candidate for that right now. it’s been hard to have to watch her suffer through all the pain, headaches, tingling, dizziness, brain fog, chronic fatigue, weakness, ... but she sure fights every day with such a sweet and happy heart. we’re thankful to get answers and looking into everything we can do to make life a bit better and easier for her despite all she has to go through... thank you for your prayers, sorry for such a late update💜 #chiari #chiarimalformationawareness #chiariwarrior #epilepsy #epilepsyawareness #blessings #azriyelmichelle

comment 6 star 48 Yesterday

Buon carnevale 🥳🎭..
oggi aperti.
dalle 9 alle 12 e dalle 15 alle 19.
📍via a. de gasperi 8 chiari bs
📞tel 030/713169
. . . .
#carnevale #carnival #chiari #brescia #otticabegni #ottica #otticabegnichiari #dariostyle #dario #montature #eyewear #mido #glasses

comment 0 star 31 2 days ago